Change Futures, Support EDS ECHO Today

Everything we do at EDS ECHO supports people suffering today and helps prevent their symptoms from progressing tomorrow, ensuring a better future for every child and adult diagnosed with these conditions.

Validation, Diagnosis, and Care

At EDS ECHO we are supporting doctors, nurses, therapists, midwives, pharmacists, health and social administrators, and community leaders and educators, worldwide, to be better informed and confident in their diagnosis and management of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and to provide care locally.

In 2022 EDS ECHO will cost $225,000, to deliver our wide portfolio of programs free to participants around the world.

We cannot do this without your support.

EDS ECHO Video of the Month

Healthcare Professionals

‘Mast Cell Activation Disease and Immune Deficiency’ – Dr. Anne Maitland
EDS ECHO Clinicians Program

Every gift counts

Together, we can advance education and care for people and families living with EDS and HSD, worldwide.

Donate Online

Donate by check

United States: As a 501c3 organization, your donation is a tax-deductible charitable contribution. EIN# 38-2813140. To donate by mail, send a check (payable to The Ehlers-Danlos Society) to 1732 1st Ave. #20373; New York, NY 10128; USA. Please reference your donation with ‘EDS ECHO’ to confirm its designation.

United Kingdom: As a registered charity in England and Wales (1180984), your donation is eligible for Gift Aid. To donate by mail, send a check (payable to The Ehlers-Danlos Society) to Office 7; 35-37 Ludgate Hill; London, EC4M 7JN; UK. Please reference your donation with ‘EDS ECHO’ to confirm its designation.

Contact us to discuss making a gift

To arrange a call to discuss how you can help, email the EDS ECHO team at 

1300 EDS ECHO Participants

The interdisciplinary model of EDS ECHO has allowed me to build a massive network to help my patients, and to learn more about each specific system involved in the healthcare of my patients with Ehlers-Danlos syndromes.

I think as important as the EDS diagnosis in itself, it was very valuable to identify the many comorbidities that this population has. More in-depth screening for specific comorbidities associated with EDS will be something to implement in my assessments.

Great discussions, great presentations, lots of new evidence, and wonderful learning about things colleagues are finding to help their patients.

Changing Futures

Late 2022 will see the launch of the Spanish EDS ECHO program, held from hubs in North and South America, and training Spanish-speaking healthcare professionals around the world. Our aim is to develop our network and reach of programs worldwide, increasing the languages the program is delivered in, and improving care and quality of life for people worldwide living with the complexities of EDS and HSD. 

The Ehlers-Danlos Society uses The Network for Good platform to receive online donations and their details will appear on your credit card statement following a donation to our organization. Network for Good’s Donor Advised Fund is an accredited charity by the Better Business Bureau.