When It’s More Than ‘Just’ Being Double-Jointed

I didn’t see it when it first came out, but there’s been a little bit of an outrage explosion in the hypermobility and Ehlers-Danlos Syndrome patient community. A petition has been launched on demanding an apology from ITV show This Morning. “There was a phone in regarding whether children should be excused from PE […]
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Charity with Bury youngster Annabelle Griffin at its heart celebrates third anniversary

A BURY family are celebrating three years of raising awareness of their daughter’s rare and life-threatening condition. Jared and Sarah Griffin were first told in December, 2012 that daughter Annabelle, then aged three, had Vascular Ehlers-Danlos Syndrome (VEDS) — meaning the slightest knock could send her to hospital. The incurable genetic condition causes collagen deficiency […]
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