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Woman with chronic illness finds hope, happiness with a pet raccoon

Some trash pandas aren’t so trashy after all. Kasey Valentine resides in Stevenage, England, with an adorable raccoon named Cody Rocket. It’s an odd pet, sure, but it’s one that she has found helps her greatly through life. Valentine suffers from multiple chronic illnesses including Myalgic Encephalomyelitis, otherwise known as chronic fatigue, and Ehlers Danlos […]
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Westfield Mom Helps Host Fundraiser for Son’s Rare Disorder

Westfield mom Syndi Lipschutz hopes for an end to Postural Orthostatic Tachycardia Syndrome, a life-altering condition that has plagued her son through his teenage years. Together with three other New Jersey moms with family members affected by the disorder (Kim DiBona, Susan Finnegan and Catherine Morrison), she is helping to organize an “Eat Dance Laugh” […]
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Teen And Her Service Dog Look Fetching In Matching Prom Outfits

Well, haute dog! Some teens would be mortified to see someone wearing a similar outfit at prom, but Erin Condrin, a 16-year-old teen from Queensland, Australia, totally digs the idea. In fact, after her prom dress was complete, she asked her dressmaker if she could make her service dog, Lacey, a matching skirt with the […]
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2016 International Symposium – May 3–6, 2016

The Ehlers-Danlos Society is proud to announce an international symposium on Ehlers-Danlos syndrome in New York City, May 3–6, 2016, generously funded by EDS UK and the Ehlers-Danlos National Foundation. The symposium is being held in alliance with the EDS consortium in Ghent and medical professionals internationally. The primary goal is to reclassify the diagnostic […]
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£50k Needed For Sick Sister Who Has ‘Lost All Will And Hope’

A COMMITTED big sister has launched a fundraising campaign with the hopes of securing a life changing experience for her little sister who suffers from a painful and incurable generic disorder. Mother-of-two, Joy Cowie-Caesar launched her appeal on fundraising platform, GoFundMe, on behalf of her 25-year-old sister Ebony-Hope who was diagnosed with three types of […]
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The loving bond between a high school student and her service dog

You don’t often hear about a vibrant 16-year-old having to deal with permanent life struggles. Erin Jane Condrin from Queensland, Australia has Ehlers Danlos Syndrome, which is a connective tissue disorder. Multiple systems of Erin’s body are impacted daily. “My joints are hugely impacted; I dislocate up to 20 times during the day, causing pain […]
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‘Rot in Hell’ note left to disabled driver

Theresa Summerfield, 27, who has had Ehlers-Danlos syndrome (EDS) since birth, had parked her car in a disabled bay at the University of Wolverhampton, before returning to find the note. The student’s symptoms became more painful after she had a mini stroke at 20 which left her relying heavily on crutches and even a wheelchair […]
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