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Ten-year-old Jarrett Payne of Sidney has so far had an amazing career in swimming. And it’s been against all odds. The son of Jeff and Wendy Payne, Jarrett was diagnosed at a very young age with Ehlers-Danlos Syndrome. As explained in medical terms, Ehlers-Danlos Syndrome is a group of inherited disorders that affect one’s connective […] View page
Julia Swanson was a vivacious, smart, and fun-loving teen until, quite abruptly, she wasn’t. One day, she felt dizzy, nauseous, and her heart was racing before leaving for school. Thinking she was coming down with the flu, she brushed it off. After a few days, the flu never set in but Julia kept having these […] View page
After only 18 months in the sport, The Bishop’s Stortford High School pupil Matthew Travers has featured for the Great Britain Junior Men’s Wheelchair Basketball team. The 18-year-old Year 13 student began playing wheelchair basketball when a joint condition called Ehlers-Danlos syndrome began to affect him and made sport and walking difficult. It has been […] View page
Time is Running Out! Register Now! Join us for The Ehlers-Danlos Society Global Learning Conference 2016 at the Baltimore Hilton on July 14-16, 2016. Click here for full details about this conference THIS IS OUR TIME TO: Learn about the latest developments in research and care from the world’s top Ehlers-Danlos researchers and medical professionals […] View page
Right around the time Katie Davis hit puberty at age 12, she started feeling fatigued all the time. “My whole family thought, ‘You’re just starting your period, you’re moody,’” remembers Katie, now 22. But then one day she stood up from a nap at her home in Ohio and fainted. She was taken to the […] View page
I was bagging your groceries. You handed me a large canvas bag and told me to fit as much as I could. I loaded a few in to create a stable bottom and put the bag in the cart. You quickly stated, “I want more in the bag.” I told you I wouldn’t be able […] View page
A student who has endured eight operations to stop her brain stem from being crushed by her skull is hoping to compete in Miss America. Victoria Graham, 22, suffers from Ehlers-Danlos Syndrome (EDS), which is causing her head to sink into her neck. Every day actions like a handshake, a gentle touch or even walking […] View page
Spirited socializing and heartfelt accolades characterized a May 25 ceremony as two local citizens and one area enterprise were recognized by the Warrenburg Chamber of Commerce for their contributions to community life. Bridgette Connelly-Howe and Peggy Knowles were both honored as the Chamber’s “Citizen of the Year” — and Cronin’s Golf Resort was lauded as […] View page
Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend Miami Hamilton and study forensic science […] View page
Her sporting ‘new beginning’ came in December 2014 when, after taking part in the throwing try-out session, she was invited to train with leading Paralympic coach Alison O’Riordan at the Lee Valley Athletics Centre in Edmonton. After a lifetime of steadily worsening physical challenges, Daobry admits she was initially hesitant – not least because she […] View page
