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HAVERFORD >> A local woman featured in an ad campaign for Hillary Clinton will be in the house during the Democratic presidential nominee’s first visit to Delaware County this election season today. Clinton will speak at the Haverford Community Recreation and Environmental Center at 11:30 a.m. Joined by daughter Chelsea Clinton and actress Elizabeth Banks, […] View page
A woman given just months to live unless she could raise £180,000 for an operation only available in America is in recovery back at home in Sutton Coldfield, with doctors saying the surgery was a success. And the cherry on the cake? It was just in time for her birthday. Mother-of-two Jessica Kill, who turned […] View page
Open to anyone with an interest in rare diseases. You have until 14 December to send your most beautiful, original, or artistic photo(s) to try to win an iPad and other prizes. There are 3 categories in the EURORDIS Photo Contest: Public Prize, Expert’s Choice, and the Instagram Prize. Find out more about our judges. […] View page
Although first described in 1892 by Tschernogobow in Moscow, the medical history of Ehlers-Danlos syndrome (EDS) begins with Edward Ehlers’s description in 1900 in Copenhagen. Several avatars would come to stymie its identification to this day, despite its frequency, and foster confusion with other pathologies. The first of these is the description by Alexandre Danlos […] View page
Ehlers-Danlos syndrome is heterogeneous in its genetic origins, molecular defects, and ultrastructure of connective tissues (CT). It frequently represents underdiagnosed heritable conditions. The altered mechanical functions of the involved tissues lead to variable combinations of increased skin distensibility and elasticity, joint laxity and CT fragility. In addition, EDS women commonly suffer from some gynecologic and […] View page
Vanessa Daobry has one word to describe her astonishing transformation from sporting novice to Rio medal hopeful – “unreal”. Just 18 months after turning up “very unfit and very unconfident” for her first shot put training session, the 39-year-old from Haringey will make her Paralympic debut on Wednesday evening ranked fourth in the world in […] View page
A section of a certain road in Drybrook last night was disturbed by shouting and loud enough celebrations The neighbours could surely forgive the family responsible- as Piers Gilliver fenced his way to a Paralympic silver medal. His mum Jo, her husband Dave, family and friends crowded around the TV as their world number one […] View page
Opioids are a class of powerful pain-relieving drugs that work by activating opioid receptors on nerve cells in the body and brain. These pain relievers are generally safe when taken for a short time and as prescribed by a doctor, but are frequently misused because they also produce euphoria. When misused or abused, opioid pain […] View page
Allysa Seely made history at the 2016 Paralympic Games when she became the first gold medal winner in the PT2 women’s triathlon, an event that debuted at the games this year. Plans to bring the triathlon to the Paralympics have been in the works for 15 years. Finally, in 2016, there were enough athletes who […] View page
This week, we are once again invited to meet The Superhumans. When the Paralympics open in Rio on Wednesday, they will surely once again help to challenge the stigma that people with disabilities face worldwide and that can bar them from education, jobs, a decent standard of living and even a family or social life. […] View page
