Archives

Good news for Rare Diseases in the UK!

At a Westminster Hall Debate yesterday afternoon, Philip Dunne MP, Minister of State for Health, stated that NHS England will develop an implementation plan for the commitments outlined in the UK Strategy for Rare Diseases that it can influence by the end of the year. For those commitments that are outside of the scope of NHS England, […]
View page


‘Most neglected disorder in modern medicine’ receives major classification update

The American Journal of Medical Genetics publishes new research on the Ehlers-Danlos syndromes The Ehlers-Danlos Society, representing a recently formed international consortium of over 90 experts on the Ehlers-Danlos syndromes, will release the culmination of two years of review on Wednesday, March 15th. This publication clarifies the bases for the diagnosis of and updates the […]
View page


Metabolic switch may bring on chronic fatigue syndrome

It’s as if a switch has been flicked. Evidence is mounting that chronic fatigue syndrome (CFS) is caused by the body swapping to less efficient ways of generating energy. Also known as ME or myalgic encephalomyelitis, CFS affects some 250,000 people in the UK. The main symptom is persistent physical and mental exhaustion that doesn’t […]
View page