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‘Her health every day is a tightrope’: Teen battles pain with art

Published in LocalXpress.ca on 6/26/17 Halifax artist Danielle Robitaille, 18, battles three medical conditions and fights chronic pain with art in her solo fundraising exhibit, Invisible: Portrayals of Chronic Pain and Invisible Illness, now on view at Pain Management Services, in the Dickson Building of the Victoria General site, Halifax. Danielle Robitaille fights pain with […]
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Megan King featured on debut episode of podcast, “People You Should Know”

Published at billcoonspeaks.com It’s here! The debut episode of People You Should Know Podcast! Every Wednesday, listeners will be exposed to a new individual who deserves to be spotlighted. These people are selected for their work in the realm of patient advocacy and philanthropy or because they are doing something outside of the norm with […]
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CME/CNE article, “Pain Management in Patients With Hypermobility Disorders” FREE to download for limited time

The full text of, “Pain Management in Patients With Hypermobility Disorders: Frequently Missed Causes of Chronic Pain” by Dr. Linda Stapleford Bluestein will be available for free from Topics in Pain Management until August 19th. Dr. Bluestein, an Assistant Professor at Medical College of Wisconsin–Central Wisconsin, has developed this CME/CNE activity to help educate medical providers […]
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The elastic girl: Living with Ehlers-Danlos Syndrome

Written by Emily Jane O’Dell for Al Jazeera Muscat, Oman – I am elastic girl. I’m as stretchy as they come, but I’m coming undone. My joints keep dislocating. Tendons tearing, ligaments loosening. Even my voice box is leaping out of place. What’s a girl with messed up glue to do? “You should join the circus!” […]
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New London-Based Hypermobility Clinic For Children and Families

Announcement from The London Hypermobility Clinic, 5th of June, 2017 I am proud to announce that a new London-based Hypermobility Clinic for children and families has been established at the Harley Street Clinic, 16 Devonshire Street, London W1G 7AF. I will be working together with my Consultant Clinical Geneticist colleague of long-standing, Dr Anand Saggar, […]
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‘Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder’, a new book by Claire Smith

Book overview provided by Redcliff House Publications Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about the newly classified ‘hypermobile Ehlers-Danlos syndrome’ […]
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