8 December 2018
MUSE Building, 18 Wally’s Walk, Macquarie University
Conference Room D, Level 3

REGISTRATION IS CLOSED FOR ALL EVENTS. If you are trying to register as a volunteer or speaker, or for other inquiries, please contact our Event Manager, Stacey Simmonds.

Parking: Nearest carpark is the West carpark. There is another mini carpark behind the building which might be used for those who need extra support/disabled parking; however, status of that carpark is uncertain due to the new hub being built towards the end of the year (on the map it is in L15).

Registration

Full day: approximately $350AUD ($259USD)
Students: approximately $200AUD ($148USD)
(Proof required at the conference)

Half day: approximately $200AUD ($148USD)
Students: approximately $140AUD ($104USD)
(Proof required at the conference)

No on-site childcare. Anyone under 16 must been accompanied by an adult but must still pay full registration.

The cancellation deadline is one week before the event.

REGISTRATION IS CLOSED FOR ALL EVENTS. If you are trying to register as a volunteer or speaker, or for other inquiries, please contact our Event Manager, Stacey Simmonds.

Schedule

Subject to change; last updated 26 November.

7.30 Registration

08.15–08.25

Welcome to Country: the Society and collaboration
Dr. Verity Pacey and Lara Bloom

08.25–08.40

Setting the scene: Multidisciplinary management services in Sydney
Prof. David Sillence

08.40–09.20

hEDS/HSD and the other types of EDS post 2017 criteria: diagnosis, differentials & management principles
Dr. Helen Cohen

09.20–09.50

Multisystemic involvement in hEDS and hypermobility disorders
Dr. Louise Tofts

09.50–10.10

Presenting symptoms in adults: research
Dr. Leslie Nicholson and Dr. Cliffton Chan

10.10–10.25

Orthostatic intolerance: research
Dr. Karen Peebles

10.25–10.40

Participation in daily activities: research
Alison Wesley

10.40–11.10 BREAK*

11.10–11.40

Lessons learned from UK inpatient and outpatient pain and rehabilitation services in this patient population
Dr. Helen Cohen

11.40–12.30 Panel Q&A

12.30–13:30 LUNCH*

13.30–13:45

Pain management: research
Dr. Verity Pacey

13.45–14.00

Therapy for joint instability: research
Dr. Inge de Wandele

14.00–14.15

Function of adults with hEDS: research
Marie Coussens

14.15–14.30

What do patients want from a health professional: research
Dr. Jane Simmonds

14.30–15.45

Multidisciplinary Treatment Workshops**
Choice of first workshop

15.45–16.15 BREAK*

16.15–17.30

Multidisciplinary Treatment Workshops**
Choice of second workshop

**Multidisciplinary Treatment Workshops

Your choice of two, one at 14.30 and one at 16.15

Workshop A
Assessment & management of adults

Chair: Associate Prof Leslie Nicholson
Dr. Cliffton Chan
Dr. Heidi Collins
Dr. Inge de Wandele

Workshop B
Assessment & management of paeds to adolescents

Chair: Dr. Jane Simmonds
Tracy Tate
Alison Wesley
Mohammed Maarj

Workshop C
Pain

Chair: Dr. Helen Cohen
Dr. Julia Hush
Dr. Verity Pacey

Medical Seminar
Medical management of individuals with different types of EDS

Chair: Dr. Louise Tofts
Prof. David Sillence
Dr. Felicity Collins

*Lunch and morning and afternoon refreshment breaks provided.