7 December 2018
MUSE Building, 18 Wally’s Walk, Macquarie University
Conference Room D, Level 3
REGISTRATION IS CLOSED FOR ALL EVENTS. If you are trying to register as a volunteer or speaker, or for other inquiries, please contact our Event Manager, Stacey Simmonds.
Parking: Nearest carpark is the West carpark. There is another mini carpark behind the building which might be used for those who need extra support/disabled parking; however, status of that carpark is uncertain due to the new hub being built towards the end of the year (on the map it is in L15).
Registration
Adults: approximately $150AUD ($111USD)
Students/Carers/Those on benefits: approximately $100AUD ($74USD)
(Proof required at the conference)
No on-site childcare. Anyone under 16 must been accompanied by an adult but must still pay full registration.
The cancellation deadline is one week before the event.
REGISTRATION IS CLOSED FOR ALL EVENTS. If you are trying to register as a volunteer or speaker, or for other inquiries, please contact our Event Manager, Stacey Simmonds.
If you are trying to register as a Volunteer or Speaker for Sydney Patient Day or have other questions, please contact our Event Manager, Stacey Simmonds.
Schedule
Subject to change; last updated 26 November.
08.00–08.45 Registration
08.45–09.00
Welcome to Country & What the 2017 Criteria mean for patients: how did we get here and where are we going?
Lara Bloom
09.00–09.30
An overview of the different types of EDS
Dr. Felicity Collins
09.30–10.15
HSD vs hEDS: an understanding
Dr. Helen Cohen
10.15–11.00
Navigating local healthcare issues
Local medical and patient panel
11.00–11.30 BREAK*
11.30–12.00
Pain and ways to manage it
Dr. Verity Pacey
12.00–12.30
Genetic Diagnostics: The Australian Perspective
Prof. David Sillence
12.30–13.30 LUNCH*
13.30–14.00
What can physiotherapy offer?
Dr. Jane Simmonds
14.00–14.30
GI issues & nutrition in EDS
Dr. Heidi Collins
14.30–15.00
Managing dislocations
Dr. Helen Cohen
15.00–15.30
Autonomic dysfunction
Dr. Inge De Wandele
15.30–16.00 BREAK*
16.00–16.30
Predictors of fatigue
Assoc. Prof. Leslie Nicholson
16.30–17.00
Managing everyday life with EDS/HSD
Dr. Louise Tofts
17.00–17.45 Panel Q&A
*Lunch and morning and afternoon refreshment breaks provided.
