2018 Sydney Patient Day

7 December 2018
MUSE Building, 18 Wally’s Walk, Macquarie University
Conference Room D, Level 3

REGISTRATION IS CLOSED FOR ALL EVENTS. If you are trying to register as a volunteer or speaker, or for other inquiries, please contact our Event Manager, Stacey Simmonds.

Parking: Nearest carpark is the West carpark. There is another mini carpark behind the building which might be used for those who need extra support/disabled parking; however, status of that carpark is uncertain due to the new hub being built towards the end of the year (on the map it is in L15).

Registration

Adults: approximately $150AUD ($111USD)

Students/Carers/Those on benefits: approximately $100AUD ($74USD)
(Proof required at the conference)

No on-site childcare. Anyone under 16 must been accompanied by an adult but must still pay full registration.

The cancellation deadline is one week before the event.

REGISTRATION IS CLOSED FOR ALL EVENTS. If you are trying to register as a volunteer or speaker, or for other inquiries, please contact our Event Manager, Stacey Simmonds.

If you are trying to register as a Volunteer or Speaker for Sydney Patient Day or have other questions, please contact our Event Manager, Stacey Simmonds.

Schedule

Subject to change; last updated 26 November.

08.00–08.45 Registration

08.45–09.00

Welcome to Country & What the 2017 Criteria mean for patients: how did we get here and where are we going?
Lara Bloom

09.00–09.30

An overview of the different types of EDS
Dr. Felicity Collins

09.30–10.15

HSD vs hEDS: an understanding
Dr. Helen Cohen

10.15–11.00

Navigating local healthcare issues
Local medical and patient panel

11.00–11.30 BREAK*

11.30–12.00

Pain and ways to manage it
Dr. Verity Pacey

12.00–12.30

Genetic Diagnostics: The Australian Perspective
Prof. David Sillence

12.30–13.30 LUNCH*

13.30–14.00

What can physiotherapy offer?
Dr. Jane Simmonds

14.00–14.30

GI issues & nutrition in EDS
Dr. Heidi Collins

14.30–15.00

Managing dislocations
Dr. Helen Cohen

15.00–15.30

Autonomic dysfunction
Dr. Inge De Wandele

15.30–16.00 BREAK*

16.00–16.30

Predictors of fatigue
Assoc. Prof. Leslie Nicholson

16.30–17.00

Managing everyday life with EDS/HSD
Dr. Louise Tofts

17.00–17.45 Panel Q&A

*Lunch and morning and afternoon refreshment breaks provided.

Sydney, 7 December 2018 Patient Day

Sydney, 8 December 2018, Health Professionals Day

Speakers for 2018 Sydney Conferences

Perth, 10 December 2018, Patient Day

Perth, 11 December 2018, Health Professionals Day

Speakers for 2018 Perth Conferences