The conference language is English.

Learning Objectives

At the conclusion of this program:

  • Participants will be able to discuss the latest research on molecular mechanisms underlying different subtypes of EDS.
  • Participants will be able to discuss the latest research in the surgical, therapeutic, and medical management of EDS/HSD.
  • Clinicians will be able to develop a multidisciplinary management plan for children, adolescents, and adults with EDS/HSD.
  • Participants will be aware of the non-medical resources available to EDS/HSD patients, and be able to share those resources appropriately.

Confirmed Speakers

  • Hans Peter Bächinger (Shriners Hospital for Children, Portland, USA)
  • Daniel Greenspan (University of Wisconsin, USA)
  • Joel Hirschhorn (Harvard Medical School, USA)
  • Yoshihiro Ishikawa (Shriners Hospital for Children, Portland, USA)
  • Karl Kadler (University of Manchester, USA)
  • Anne-Marie Malfait (Rush University, Chicago, USA)
  • Roy Morello (University of Arkansas, USA)
  • John Oakley (University of Washington, USA)
  • Florence Ruggiero (University of Lyon, France)


Around 200-250 attendees are expected, including:

  • Geneticists
  • Clinical researchers
  • Basic scientists
  • Internists
  • Paediatricians
  • Endocrinologists
  • Rheumatologists
  • Radiologists
  • Nephrologists
  • Orthopaedics
  • Nurses
  • Genetic Counsellors
  • Physiotherapists
  • Occupational therapists
  • Psychologists
  • Dentists
  • Industry Representatives