2018 EDS Global Learning Conference Sponsors

If you’re interested in becoming a conference sponsor, please download our Sponsorship Prospectus and Commitment Form, or get in touch with our development team.

Gold Sponsor

GLOBAL LEARNING CONFERENCE

Silver Ring Splint logo
 

https://www.silverringsplint.com/

In 1974, occupational therapist Cynthia Garris was forced to take a new look at splint therapy – in that year, she was diagnosed with Rheumatoid Arthritis. While plastic splints were adequate for treating short-term trauma, they were not an ideal solution for lifetime wear. In 1985, she set out to design and manufacture a new series of splints that were both more effective and more attractive than the splints then in use. In the process, she revolutionized splint therapy.

Wearing SilverRing™ Splints removes the stigma of splinting and increases patient compliance. Patients experience positive reactions from others which improves their perspective on treatment.

Whether they need finger stability for hand-intensive work or for everyday tasks like cooking and holding a pencil, thousands of people have made SilverRing™ Splints a valued part of their everyday lives. SilverRing™ Splints encourage complete patient well-being, medically effective hand therapy and a positive self-image.

Gold Sponsor

GLOBAL LEARNING CONFERENCE

Backpack Health logo

https://www.backpackhealth.com/

Backpack Health is a health tech company building tools to help people manage their health details, care and communication. We believe everyone should be able to track their own health comprehensively, and do the same for the people they care about – no matter what their health concerns are, no matter what family means to them, and no matter what language they speak – all in one place.

We’re a group of passionate, creative people building innovative tools to help people better manage their health details, care and communication.

Our mission: We’re making it easy for everyone to access, own and control all of their health information to support better health for themselves, their loved ones, their communities, and for us all.

Our journey: The inspiration behind Backpack Health was pretty simple: We shared similar problems, and we wanted to solve them.

Here’s the thing: Your health information belongs to you. You have a legal right to it, and that means with the right tools, you can make the most out of your own health narrative. Our goal is to help you do just that.

Bronze Sponsor

GLOBAL LEARNING CONFERENCE

EDS Awareness logo

http://edsawareness.com

 
www.EDSawareness.com is an online resource for the Ehlers-Danlos syndrome community, individuals suffering with EDS and their caregiver networks.

We help create independent, local EDS Support Groups. We have a network of more than 100 groups in the contiguous US, Alaska, Australia, Canada, UK, and Austria

Our program hosts live webinars monthly to help educate our members, caregivers and health care providers. Our EDS medical experts span 18 specialties and address more than 50 topics affecting EDS patients.

The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos syndrome by patients, the general public and within the medical community – in order to improve the quality of life for those affected by EDS – and those who care for them.

Bronze Sponsor

GLOBAL LEARNING CONFERENCE

NYIT logo

https://www.nyit.edu/medicine/

If you or a loved one suffers from Ehlers-Danlos Syndrome (EDS), you need to find a comprehensive treatment center that will empower you and improve your well-being. At this center, you’ll learn about treatment options for EDS, and discover how EDS patients can improve their quality of life.

Our EDS program is available at the NYIT Academic Health Centers. As a progressive collaboration among physicians and health care professionals, we work to alleviate the physical limitations and debilitating symptoms of EDS.

Our integrated team works together across specialties to offer a variety of services to help evaluate and design individualized treatment programs.

Supporting Sponsor

GLOBAL LEARNING CONFERENCE

 

Avazzia
 

http://avazzia.com/

BEST technology, developed by Avazzia’s CEO Tim Smith, produces microcurrent electrical impulses, which are transmitted by electrodes in the device through the skin to communicate with the body’s nervous system. BEST products are controlled by a high-performance microcomputer chip, which uses Avazzia proprietary software

These hand-held devices are FDA-cleared for the symptomatic relief and management of chronic, intractable pain and adjunctive treatment in the management of post-surgical and post-traumatic pain (available by prescription only). These noninvasive neuro-stimulation devices allow patients to take control of their pain management.

Avazzia BEST (Bio-Electric Stimulation Technology) products feature a tissue reaction response indication, making them superior to traditional TENS units. BEST products work on different neural paths than a traditional TENS.

Healthcare providers – including physicians, dentists, chiropractors, physical therapists and athletic trainers – use these devices for their own pain management and with their patients.

Patients use Avazzia BEST technology to manage pain connected with chronic and acute pain; dental patients use Avazzia products to manage pain after tooth extractions; athletes – including college and professional athletes – use Avazzia BEST products to reduce pain associated with rehab and after injuries.

Avazzia has strategic alliances with research foundations and medical schools in the United States, India, Malaysia, Romania, and Taiwan and to perform clinical studies with BEST products. Avazzia has relationships with domestic and international distributors, clinics and professionals to market its products.

Avazzia was founded in January 2004 and incorporated in Texas in May 2004. All Avazzia BEST products are manufactured and serviced at Avazzia corporate headquarters in Texas.

Supporting Sponsor

GLOBAL LEARNING CONFERENCE

CSF logo

http://csfinfo.org/

CSF (Chiari & Syringomyelia Foundation, Inc.) is a non-profit organization that was founded in October 2007 with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.

The CSF Scientific Education & Advisory Board is made up of many internationally-renowned medical doctors, professors, scientists and experts. The CSF Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families and patients, who have long been advocates in the CM/SM community. Their skills and drive to develop, fund, and oversee CSF programs and research will improve the lives of the three million families affected by Chiari malformation, syringomyelia and related disorders in the US, alone.

Supporting Sponsor

GLOBAL LEARNING CONFERENCE

 
CSF logo
 

https://www.dmorthotics.com/

DM Orthotics is a world leading creator of medical rehabilitation and sports performance products.

We provide elastomeric fabric, dynamic movement orthoses to over 25 countries, helping to improve the lives of people who face a range of physical challenges. We are dedicated to the research, development and evolution of our products, with the aim to constantly improve the lives of the people who use them.

Everything we create undergoes the highest levels of clinical and scientific testing to ensure that it works at an optimal level for our customers.

Our design and production process incorporates state-of-the-art technology with traditional tailoring. We take the most successful elements from new technology and traditional tailoring to produce individually custom-made dynamic movement orthoses that are unmatched in their function and quality.

We work towards a single goal – to improve function and encourage independence for the user.

Supporting Sponsor

GLOBAL LEARNING CONFERENCE

 
 
Dysautonomia International logo
 

http://dysautonomiainternational.org/

Dysautonomia International is a 501(c)(3) non-profit organization run entirely by volunteers. Our volunteers include patients, family members, friends, physicians, researchers, and other health professionals. We have a Board of Directors, a Medical Advisory Board, and a Patient Advisory Board, as well as many other volunteers. Our main offices are in New York and Maryland, but we have volunteers all across the US and in several other countries.

We help organize events around the globe each October for Dysautonomia Awareness Month. We hold a large annual conference each summer during which dysautonomia patients, family members and experts from around the world to join together for a weekend of educational programming, fun social events, and grassroots dysautonomia advocacy. We educate medical professionals about autonomic disorders.

We fund medical research on POTS and work with researchers to speed up the pace of discovery. One theme that overlaps with all of our work is the need to involve patients in the process. We believe that patients who live with a chronic illness are great untapped source of knowledge. Throughout the year, we connect patients and families with one and other through email, social media and in-person events. We empower patients to become their own best advocate, and provide a platform for those who want to advocate for others.

Supporting Sponsor

GLOBAL LEARNING CONFERENCE

Dysautonomis Support Network logo

http://www.dysautonomiasupport.org/

DSN is a U.S. based, 501 (C) (3) non-profit organization. Our mission is to provide support, resources, education, and advocacy for patients affected by the many forms of dysautonomia and related conditions such as: connective tissue disorders, mast cell activation disorders, Chiari malformation, and gastric motility disorders.

Founded in 2012 as Dysautonomia Divas, the organization now runs over 60 groups online and has chapters in all 50 United States. Our leadership team, executive board, and all of our volunteer leaders and admins are trained to empower patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic environment and a sense of community in our national and state chapters. We are patient-focused and staffed by volunteers living with these disorders.

Rarer Types Day Sponsors

Platinum Sponsor

RARER TYPES DAY

 

https://acertx.com/

Acer is a pharmaceutical company focused on the acquisition, development and commercialization of therapies for patients with serious rare and ultra-rare diseases with critical unmet medical need. Acer’s late-stage clinical pipeline includes two candidates for severe genetic disorders: EDSIVO™ (celiprolol) for vascular Ehlers-Danlos syndrome (vEDS), and ACER-001 (a fully taste-masked, immediate release formulation of sodium phenylbutyrate) for urea cycle disorders (UCD) and Maple Syrup Urine Disease (MSUD). There are no FDA-approved drugs for vEDS and MSUD and limited options for UCD, which collectively impact approximately 7,000 patients in the U.S. Acer’s product candidates have clinical proof-of-concept and mechanistic differentiation, and Acer intends to seek approval for them in the U.S. by using the regulatory pathway established under section 505(b)(2) of the Federal Food, Drug, and Cosmetic Act (FFDCA) that allows an applicant to rely at least in part on third-party data for approval, which may expedite the preparation, submission, and approval of a marketing application.

Gold Sponsor

RARER TYPES DAY

Dysautonomis Support Network logo

http://www.dysautonomiasupport.org/

DSN is a U.S. based, 501 (C) (3) non-profit organization. Our mission is to provide support, resources, education, and advocacy for patients affected by the many forms of dysautonomia and related conditions such as: connective tissue disorders, mast cell activation disorders, Chiari malformation, and gastric motility disorders.

Founded in 2012 as Dysautonomia Divas, the organization now runs over 60 groups online and has chapters in all 50 United States. Our leadership team, executive board, and all of our volunteer leaders and admins are trained to empower patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic environment and a sense of community in our national and state chapters. We are patient-focused and staffed by volunteers living with these disorders.

Bronze Sponsor

RARER TYPES DAY

 
CSF logo
 

https://www.dmorthotics.com/

DM Orthotics is a world leading creator of medical rehabilitation and sports performance products.

We provide elastomeric fabric, dynamic movement orthoses to over 25 countries, helping to improve the lives of people who face a range of physical challenges. We are dedicated to the research, development and evolution of our products, with the aim to constantly improve the lives of the people who use them.

We now employ over 55 people nationwide, from clinicians to pattern designers.

Martin Matthews, Orthotist, had a vision to improve the lives of people living with neurological conditions. From this vision, DM Orthotics left its humble beginnings and has grown into a multi-national market leader, renowned for its quality of research and products.

Recognising the clinical importance of Dynamic Elastomeric Fabric Orthoses (DEFOs) for the future, Martin’s entrepreneurial spirit saw him set up a new manufacturing site for the pioneering orthoses, securing the jobs and expertise of the existing production staff at Tyco (Redruth) UK. With a small but dedicated team of 15 staff, he rebranded his DEFOs, ‘Dynamic Movement Orthoses’ (DMO) and in November 2004, DM Orthotics was born.

Bronze Sponsor

RARER TYPES DAY

 
EDS Awareness logo

http://edsawareness.com

www.EDSawareness.com is an online resource for the Ehlers-Danlos syndrome community, individuals suffering with EDS, and their caregiver networks. We help create independent, local EDS Support Groups. We have a network of more than 100 groups in the contiguous US (plus three in Australia, three in Canada, one in UK, one in Austria, and one in Alaska.)

Our program hosts live webinars monthly to help educate our members, caregivers and health care providers. Our EDS medical experts span 18 specialties and address more than 50 topics affecting EDS patients. The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome by patients, the general public and within the medical community — in order to improve the quality of life for those affected by EDS — and those who care for them.

Website content is driven by user participation and learning – for the benefit of all those with Ehlers-Danlos syndromes and related disorders. The greater the participation, the greater the value to the whole community.

Bronze Sponsor

RARER TYPES DAY

Gene by Gene logo

https://www.genebygene.com/

Gene By Gene was founded in 2000, specializing in DNA-based ancestry & genealogy as Family Tree DNA. The first company of its kind, Family Tree DNA captured the hearts of genealogy enthusiasts and to this day remains the leading company in the space. The expertise in the space has led to many prestigious relationships along the way, including an exclusive partnership as the testing provider for National Geographic’s Genographic Project.

Through Family Tree DNA, Gene By Gene built an incredible laboratory and an incredible staff of experts. By 2011, it only made sense to expand the scope of capabilities into the medical and research fields, as DNA Traits and DNA DTC. Through these companies, clinicians and patients have had access to an entire suite of clinical and research genetic tests, and both entities are now known under one unified name, Gene By Gene. It is our mission to unleash the power of genetic testing for everyone, giving unparalleled insight into ourselves and our future.

Bronze Sponsor

RARER TYPES DAY

We Design (Silver Splints) logo

https://www.silversplints.com/en/

We Design manufactures braces with minimal material use without compromising the comfort and durability of the splint. At We Design people work with passion and commitment. Every day expertise, skills and dedication meet each other to create custom- made splints for our customers.

We Design was established in 1999 and is founded by Wouter Robin Engelshoven. We Design has blossomed to be a household name within the orthopaedic field. We are specialised in the manufacturing of silver splints for finger, thumb, hand, wrist, andn elbow. In the Netherlands and abroad, the splints have proved themselves to be effective and comfortable to wear in relation to the problem addressed.