2018 EDS Rarer Types Day

Hilton Baltimore • 401 West Pratt Street • Baltimore, Maryland

Anne De Paepe, MD, PhD — “A Genetic Overview of EDS”

Maggie Buckley — “Psychological Management and Involvement with EDS”

Patient Perspective

Schedule

7:30 am

  • Registration Open

8:30 – 8:45 am

8:45 – 9:15 am

9:15 – 10:00 am

  • Patient perspectives: Living with EDS

10:00 – 10:30

  • To be confirmed: Psychological Management and Involvement with EDS

10:30 – 11:00 am • Morning Break

11:00 – 11:30 am

  • Shani Weber: Preparing For Your Appointment and Putting Together a Medical Team

11:30 am – 12 noon

12 noon – 12:30 pm

12:30 – 1:30 pm • Lunch

1:30 – 1:50 pm

1:50 – 2:10 pm

2:10 – 2:30 pm

2:30– 3:00 pm

3:00 – 3:30 pm • Afternoon Break

3:30 – 4:00 pm

4:00 – 4:30 pm

4:30 – 5:00 pm

5:00 – 5:30 pm

5:30 – 6:30 pm

  • Group Discussion and Q&A

Platinum Sponsor

RARER TYPES DAY

 

 

https://acertx.com/

Bronze Sponsor

RARER TYPES DAY

 
 
CSF logo
 
 

https://www.dmorthotics.com/