2018 Global Learning Conference Schedule

Schedules subject to change. Updated July 16, 2018.

Thursday, August 2, 2018

10:00 am

  • Registration Open

12:45 – 1:45 pm

  • Affiliates Meeting

2:00 – 3:00 pm

3:15 – 5:15 pm

Hypermobility Plenary Session:

5:30 – 7:00 pm • Welcome Reception

7:00 – 8:00 pm

  • Maggie Buckley: Tips and Tricks for First Time Conference Attendees and the Newly Diagnosed
  • Tom Query: Discussion Group, Caregivers

8:00 pm

  • Young Adults Meetup

Friday, August 3, 2018

7:30 am

  • Registration Open

8:30 – 8:45 am

8:45 – 9:15 am

9:15 – 9:45 am

9:45 – 10:15 am

10:15 – 10:45 am • Morning Break

10:45 – 11:30 am (Breakout Sessions)

11:45 am – 12:30 pm (Breakout Sessions)

12:30 – 1:30 pm • Lunch and Plenary Session

1:30 – 2:15 pm (Breakout Sessions)

  • Dr. Peter Rowe: Managing Life with Autonomic Symptoms
  • Maggie Buckley: Psychological Management and Involvement with EDS/HSD
  • Cancelled: Orthopedic Considerations with EDS/HSD
  • Dr. Jordan Tishler: An Evaluation of the Use of Cannabis in EDS with Chronic Pain

2:30 – 3:15 pm (Breakout Sessions)

3:15 – 3:45 pm • Afternoon Break

3:45 – 4:30 pm (Breakout Sessions)

4:45 – 5:30 pm • Panel Q&A

7:00 pm • Zebra Ball with Noah Baerman

Saturday, August 4, 2018

7:30 am

  • Registration Open

8:30 – 8:45 am

8:45 – 9:15 am

9:15 – 9:45 am

9:45 – 10:15 am

10:15 – 10:45 am • Morning Break

10:45 – 11:30 am (Breakout Sessions)

11:45 am – 12:30 pm (Breakout Sessions)

12:30 – 1:30 pm • Lunch and Plenary Session

  • To be confirmed: How to Get Involved: Advocacy and Awareness

1:30 – 2:15 pm (Breakout Sessions)

2:30 – 3:15 pm

3:15 – 3:45 pm • Afternoon Break

3:45 – 4:30 pm

4:45 – 5:30 pm • Panel Q&A

6:00 – 8:00 pm • Zebra Rally

Rarer Types Day • Sunday, August 5, 2018

7:30 am

  • Registration Open

8:30 – 8:45 am

8:45 – 9:15 am

9:15 – 10:00 am

  • Patient perspectives: Living with EDS

10:00 – 10:30

  • To be confirmed: Psychological Management and Involvement with EDS

10:30 – 11:00 am • Morning Break

11:00 – 11:30 am

  • Shani Weber: Preparing For Your Appointment and Putting Together a Medical Team

11:30 am – 12 noon

  • Open group discussion

12 noon – 12:30 pm

12:30 – 1:30 pm • Lunch

1:30 – 1:50 pm

1:50 – 2:10 pm

2:10 – 2:30 pm

2:30– 3:00 pm

3:00 – 3:30 pm • Afternoon Break

3:30 – 4:00 pm

4:00 – 4:30 pm

4:30 – 5:00 pm

5:00 – 5:30 pm

5:30 – 6:30 pm

  • Group Discussion and Q&A

Medical Professionals Day • Sunday, August 5, 2018

ALL CARE IS LOCAL: Identifying and Managing EDS in a Clinical Setting

7:30 am

  • Registration Open

9:00 – 9:15 am

9:15 – 9:45 am

9:45 – 10:15 am

10:15 – 10:30 am

10:30 – 11:00 am • Morning Break

11:00 – 11:20 am

11:20 – 11:40

11:40 am – 12 noon

12 noon – 12:20 pm

  • Dr. Alan Hakim: Behavioral Aspects of EDS: Why is this person so anxious?

12:20– 1:30 pm • Lunch

1:30 – 1:50 pm

  • Lara Bloom: The Clinician’s Role in the Patient’s Journey to Diagnosis: A Patient’s Perspective

1:50 – 2:10 pm

2:10 – 2:30 pm

2:30 – 3:10 pm

3:10 – 3:30 pm

3:30 – 4:00 pm • Afternoon Break

4:00 – 4:45 pm

  • Q&A Panel

4:45 – 5:00 pm

  • Evaluations