Presentations from Saturday, 7 April 2018

Qasim Aziz, MD, FRCP: GI Complication ins hEDS and HSD

Lara Bloom: The 2017 EDS Classification—The International Work of The Ehlers-Danlos Society

Prof. Antonin Bulbena: Handling Subjective and Emotional Dimensions in EDS

Marco Castori: Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

Anne Maitland, MD, PhD: Having Signs and Symptoms of “None of the Above”? Think MCAS!

Dr. Jane Simmonds, MCSP, SFHEA: Physiotherapy Management of Hypermobility Spectrum Disorders and Hypermobile Ehlers-Danlos Syndrome Within the Context of the Multidisciplinary Team

We were very excited to bring together leading world experts to discuss Ehlers-Danlos syndromes and related disorders, including the newly-described hypermobility spectrum disorders. This was our first European conference. The local organizing committee of Henk Klooster, Debbie Hellenbrand, and Daniel Keszthelyi was supported by The Ehlers-Danlos Society and Congress Cares.

Accreditation

The application for accreditation is pending for the following associations:

The Netherlands Dutch Association of Internists granted with 6 points
The Dutch Society of Physical and Rehabilitation Medicine (NSPRM/VRA) granted with 6 points
Dutch Society for Rheumatology granted with 6 points
Dutch Clinical Genetics societie (VKGN) granted with 6 points
Royal Dutch Society for Physical Therapy (KNGF) with 7 points

UPDATE: There are places NOW AVAILABLE for patients and relatives for the professional sessions on Friday. There are no more places for patients on Saturday. Due to limited availability at the location, registration is limited to 350 participants. To register, please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/. Patients and relatives can sign up for the waiting list by emailing registrations@congresscare.com.

Registration fees

Medical doctors, heath care organisations,
insurance companies, policy makers………………………………€375,00
Medical doctors in training, paramedics,
policy makers………………………………………………………………………€175,00
Patients and relatives (Saturday: fully booked)
NEW: Patients and relatives (Friday)………………………………€ 75,00

To view and download a PDF flyer for the conference, please click here.

Speakers and presentations

Qasim Aziz, MBBS, FRCP, PhD

Gastrointestinal complications in EDS and HSD

Lara Bloom

April 6—The international work of The Ehlers-Danlos Society

April 7—2017 criteria: what do they mean for patients?

Antonio Bulbena, MD, PhD, MSc

April 6—The therapeutic value of identifying psychopathology in the EDS

April 7—Handling the subjective emotional dimensions in the EDS

Marco Castori, MD, PhD

Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders

Alan Hakim, MA, FRCP

Autonomic dysfunction and fatigue

Fraser C. Henderson, Sr., MD

Headaches in the EDS population

Fransiska Malfait, MD, PhD

April 6—The rarer types of EDS

Anne Maitland, MD, PhD

April 6—Entangled Life at the Borders: Mast Cell Activation Syndrome and Connective Tissue Disorders

April 7—Have signs and symptoms of “None of the Above”? Think MCAS!

Jane Simmonds, MCSP, MMACP, FHEA

Physiotherapy and rehabilitation within the context of the multidisciplinary team

To register: please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/.

Due to limited availability at the location, registration is limited to 350 participants.

Agenda

Friday, 6 April
Conference Chair Dr. Emile Jansen

Time	Activity/Session	Presenter
09.00 – 09.15	Welcome & Introductions	Lara Bloom & Dr. Jansen
09.15 – 10.00	The rarer types of Ehlers-Danlos syndromes	Prof. Fransiska Malfait
10.00 – 10.45	Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders	Dr. Marco Castori
10.45 – 11.15	BREAK
11.15 – 12.00	Physiotherapy and rehabilitation within the context of the multidisciplinary team	Jane Simmonds
12.00 – 12.45	Gastrointestinal complications in EDS and HSD	Prof. Qasim Aziz
12.45 – 13.45	LUNCH
13.45 – 14.30	Headaches in the EDS population	Dr. Fraser C. Henderson
14.30 – 15.15	Autonomic dysfunction and fatigue	Dr. Alan Hakim
15.15 – 15.45	BREAK
15.45 – 16.30	The therapeutic value of identifying psychopathology in the EDS	Prof. Antonio Bulbena
16.30 – 17.15	Entangled Life at the Borders: Mast Cell Activation Syndrome and Connective Tissue Disorders	Dr. Anne Maitland
17.15 – 17.30	The international work of The Ehlers-Danlos Society	Lara Bloom

Saturday, 7 April
Conference Chair Dr. Emile Jansen

Time	Activity/Session	Presenter
09.00 – 09.15	Welcome & Introductions	Lara Bloom & Dr. Jansen
09.15 – 10.00	Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders	Dr. Marco Castori
10.00 – 10.30	BREAK
10.30 – 11.15	Physiotherapy and rehabilitation within the context of the multidisciplinary team	Jane Simmonds
11.15 – 12.00	Gastrointestinal complications in EDS and HSD	Prof. Qasim Aziz
12.00 – 12.45	2017 criteria: what do they mean for patients?	Lara Bloom
12.45 – 13.45	LUNCH
13.45 – 14.30	Headaches in the EDS population	Dr. Fraser C. Henderson
14.30 – 15.15	Autonomic dysfunction and fatigue	Dr. Alan Hakim
15.15 – 15.45	BREAK
15.45 – 16.15	Handling the subjective emotional dimensions in the EDS	Prof. Antonio Bulbena
16.15 – 17.00	Have signs and symptoms of “None of the Above”? Think MCAS!	Dr. Anne Maitland
17.00 – 17.15	Working together in a positive direction	Debbie Hellenbrand

2018 European EDS Conference – Maastricht, The Netherlands