2018 European EDS Conference – Maastricht, The Netherlands

 
We are very excited to bring together leading world experts to discuss Ehlers-Danlos syndromes and related disorders, including the newly-described hypermobility spectrum disorders. This is our first European conference and we look forward to meeting experts and those affected by these conditions from across Europe.

We hope to see you in Maastricht.

The local organizing committee of Henk Klooster, Debbie Hellenbrand, and Daniel Keszthelyi is supported by The Ehlers-Danlos Society and Congress Cares.

UPDATE: There are no more places for patients on Saturday, and just a few for medical professionals. Due to limited availability at the location, registration is limited to 350 participants. To register, please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/. Patients and relatives can sign up for the waiting list by emailing registrations@congresscare.com.

Registration fees

Medical doctors, heath care organisations,
insurance companies, policy makers………………………………€375,00
Medical doctors in training, paramedics,
policy makers………………………………………………………………………€175,00
Patients and relatives.……………………………………………………….€  15,00

To view and download a PDF flyer for the conference, please click here.

Speakers and presentations

Qasim Aziz, MBBS, FRCP, PhD
Gastrointestinal complications in EDS and HSD
Lara Bloom
April 6—The international work of The Ehlers-Danlos Society
April 7—2017 criteria: what do they mean for patients?
Lara Bloom
April 6—The therapeutic value of identifying psychopathology in the EDS
April 7—Handling the subjective emotional dimensions in the EDS
Marco Castori, MD, PhD
Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders
Alan Hakim, MA, FRCP
Autonomic dysfunction and fatigue
Fraser C. Henderson, Sr., MD
Headaches in the EDS population
Fransiska Malfait, MD, PhD
April 6—The rarer types of EDS
Jane Simmonds, MCSP, MMACP, FHEA
Physiotherapy and rehabilitation within the context of the multidisciplinary team

To register: please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/

Due to limited availability at the location, registration is limited to 350 participants.

Agenda

Friday, 6 April
Conference Chair Dr. Emile Jansen

TimeActivity/SessionPresenter

09.00 – 09.15

Welcome & Introductions

Lara Bloom & Dr. Jansen

09.15 – 10.00

The rarer types of Ehlers-Danlos syndromes

Prof. Fransiska Malfait

10.00 – 10.45

Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders

Dr. Marco Castori

10.45 – 11.15

BREAK

11.15 – 12.00

Physiotherapy and rehabilitation within the context of the multidisciplinary team

Jane Simmonds

12.00 – 12.45

Gastrointestinal complications in EDS and HSD

Prof. Qasim Aziz

12.45 – 13.45

LUNCH

13.45 – 14.30

Headaches in the EDS population

Dr. Fraser C. Henderson

14.30 – 15.15

Autonomic dysfunction and fatigue

Dr. Alan Hakim

15.15 – 15.45

BREAK

15.45 – 16.30

The therapeutic value of identifying psychopathology in the EDS

Prof. Antonio Bulbena

16.30 – 17.15

TBC

Dr. Emile Jansen

17.15 – 17.30

The international work of The Ehlers-Danlos Society

Lara Bloom

 


Saturday, 7 April
Conference Chair Dr. Emile Jansen

TimeActivity/SessionPresenter

09.00 – 09.15

Welcome & Introductions

Lara Bloom & Dr. Jansen

09.15 – 10.00

Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders

Dr. Marco Castori

10.00 – 10.30

BREAK


10.30 – 11.15

Physiotherapy and rehabilitation within the context of the multidisciplinary team

Jane Simmonds

11.15 – 12.00

Gastrointestinal complications in EDS and HSD

Prof. Qasim Aziz

12.00 – 12.45

2017 criteria: what do they mean for patients?

Lara Bloom

12.45 – 13.45

LUNCH


13.45 – 14.30

Headaches in the EDS population

Dr. Fraser C. Henderson

14.30 – 15.15

Autonomic dysfunction and fatigue

Dr. Alan Hakim

15.15 – 15.45

BREAK


15.45 – 16.15

Handling the subjective emotional dimensions in the EDS

Prof. Antonio Bulbena

16.15 – 17.00

TBC

Dr. Emile Jansen

17.00 – 17.15

Working together in a positive direction

Debbie Hellenbrand