Presentations from Saturday, 7 April 2018
Qasim Aziz, MD, FRCP: GI Complication ins hEDS and HSD
Lara Bloom: The 2017 EDS Classification—The International Work of The Ehlers-Danlos Society
Prof. Antonin Bulbena: Handling Subjective and Emotional Dimensions in EDS
Marco Castori: Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
Anne Maitland, MD, PhD: Having Signs and Symptoms of “None of the Above”? Think MCAS!
Dr. Jane Simmonds, MCSP, SFHEA: Physiotherapy Management of Hypermobility Spectrum Disorders and Hypermobile Ehlers-Danlos Syndrome Within the Context of the Multidisciplinary Team
We were very excited to bring together leading world experts to discuss Ehlers-Danlos syndromes and related disorders, including the newly-described hypermobility spectrum disorders. This was our first European conference. The local organizing committee of Henk Klooster, Debbie Hellenbrand, and Daniel Keszthelyi was supported by The Ehlers-Danlos Society and Congress Cares.
Accreditation
The application for accreditation is pending for the following associations:
- The Netherlands Dutch Association of Internists granted with 6 points
- The Dutch Society of Physical and Rehabilitation Medicine (NSPRM/VRA) granted with 6 points
- Dutch Society for Rheumatology granted with 6 points
- Dutch Clinical Genetics societie (VKGN) granted with 6 points
- Royal Dutch Society for Physical Therapy (KNGF) with 7 points
UPDATE: There are places NOW AVAILABLE for patients and relatives for the professional sessions on Friday. There are no more places for patients on Saturday. Due to limited availability at the location, registration is limited to 350 participants. To register, please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/. Patients and relatives can sign up for the waiting list by emailing registrations@congresscare.com.
Registration fees
Medical doctors, heath care organisations,
insurance companies, policy makers………………………………€375,00
Medical doctors in training, paramedics,
policy makers………………………………………………………………………€175,00
Patients and relatives (Saturday: fully booked)
NEW: Patients and relatives (Friday)………………………………€ 75,00
To view and download a PDF flyer for the conference, please click here.
Speakers and presentations
To register: please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/.
Due to limited availability at the location, registration is limited to 350 participants.
Agenda
Friday, 6 April
Conference Chair Dr. Emile Jansen
| Time | Activity/Session | Presenter |
|---|---|---|
09.00 – 09.15 | Welcome & Introductions | Lara Bloom & Dr. Jansen |
09.15 – 10.00 | The rarer types of Ehlers-Danlos syndromes | Prof. Fransiska Malfait |
10.00 – 10.45 | Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders | Dr. Marco Castori |
10.45 – 11.15 | BREAK | |
11.15 – 12.00 | Physiotherapy and rehabilitation within the context of the multidisciplinary team | Jane Simmonds |
12.00 – 12.45 | Gastrointestinal complications in EDS and HSD | Prof. Qasim Aziz |
12.45 – 13.45 | LUNCH | |
13.45 – 14.30 | Headaches in the EDS population | Dr. Fraser C. Henderson |
14.30 – 15.15 | Autonomic dysfunction and fatigue | Dr. Alan Hakim |
15.15 – 15.45 | BREAK | |
15.45 – 16.30 | The therapeutic value of identifying psychopathology in the EDS | Prof. Antonio Bulbena |
16.30 – 17.15 | Entangled Life at the Borders: Mast Cell Activation Syndrome and Connective Tissue Disorders | Dr. Anne Maitland |
17.15 – 17.30 | The international work of The Ehlers-Danlos Society | Lara Bloom |
Saturday, 7 April
Conference Chair Dr. Emile Jansen
| Time | Activity/Session | Presenter |
|---|---|---|
09.00 – 09.15 | Welcome & Introductions | Lara Bloom & Dr. Jansen |
09.15 – 10.00 | Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders | Dr. Marco Castori |
10.00 – 10.30 | BREAK | |
10.30 – 11.15 | Physiotherapy and rehabilitation within the context of the multidisciplinary team | Jane Simmonds |
11.15 – 12.00 | Gastrointestinal complications in EDS and HSD | Prof. Qasim Aziz |
12.00 – 12.45 | 2017 criteria: what do they mean for patients? | Lara Bloom |
12.45 – 13.45 | LUNCH | |
13.45 – 14.30 | Headaches in the EDS population | Dr. Fraser C. Henderson |
14.30 – 15.15 | Autonomic dysfunction and fatigue | Dr. Alan Hakim |
15.15 – 15.45 | BREAK | |
15.45 – 16.15 | Handling the subjective emotional dimensions in the EDS | Prof. Antonio Bulbena |
16.15 – 17.00 | Have signs and symptoms of “None of the Above”? Think MCAS! | Dr. Anne Maitland |
17.00 – 17.15 | Working together in a positive direction | Debbie Hellenbrand |