2018 European EDS Conference – Maastricht, The Netherlands

 

Presentations from Saturday, 7 April 2018

Qasim Aziz, MD, FRCP: GI Complication ins hEDS and HSD
 
Lara Bloom: The 2017 EDS Classification—The International Work of The Ehlers-Danlos Society
 
Prof. Antonin Bulbena: Handling Subjective and Emotional Dimensions in EDS
 
Marco Castori: Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
 
Anne Maitland, MD, PhD: Having Signs and Symptoms of “None of the Above”? Think MCAS!
 
Dr. Jane Simmonds, MCSP, SFHEA: Physiotherapy Management of Hypermobility Spectrum Disorders and Hypermobile Ehlers-Danlos Syndrome Within the Context of the Multidisciplinary Team
 
We were very excited to bring together leading world experts to discuss Ehlers-Danlos syndromes and related disorders, including the newly-described hypermobility spectrum disorders. This was our first European conference. The local organizing committee of Henk Klooster, Debbie Hellenbrand, and Daniel Keszthelyi wass supported by The Ehlers-Danlos Society and Congress Cares.

Accreditation

The application for accreditation is pending for the following associations:

  • The Netherlands Dutch Association of Internists granted with 6 points
  • The Dutch Society of Physical and Rehabilitation Medicine (NSPRM/VRA) granted with 6 points
  • Dutch Society for Rheumatology granted with 6 points
  • Dutch Clinical Genetics societie (VKGN) granted with 6 points
  • Royal Dutch Society for Physical Therapy (KNGF) with 7 points

UPDATE: There are places NOW AVAILABLE for patients and relatives for the professional sessions on Friday. There are no more places for patients on Saturday. Due to limited availability at the location, registration is limited to 350 participants. To register, please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/. Patients and relatives can sign up for the waiting list by emailing registrations@congresscare.com.

Registration fees

Medical doctors, heath care organisations,
insurance companies, policy makers………………………………€375,00
Medical doctors in training, paramedics,
policy makers………………………………………………………………………€175,00
Patients and relatives (Saturday: fully booked)
NEW: Patients and relatives (Friday)………………………………€  75,00

To view and download a PDF flyer for the conference, please click here.

Speakers and presentations

Qasim Aziz, MBBS, FRCP, PhD
Gastrointestinal complications in EDS and HSD
Lara Bloom
April 6—The international work of The Ehlers-Danlos Society
April 7—2017 criteria: what do they mean for patients?
Lara Bloom
April 6—The therapeutic value of identifying psychopathology in the EDS
April 7—Handling the subjective emotional dimensions in the EDS
Marco Castori, MD, PhD
Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders
Alan Hakim, MA, FRCP
Autonomic dysfunction and fatigue
Fraser C. Henderson, Sr., MD
Headaches in the EDS population
Fransiska Malfait, MD, PhD
April 6—The rarer types of EDS
Anne Maitland, MD, PhD
April 6—Entangled Life at the Borders: Mast Cell Activation Syndrome and Connective Tissue Disorders
April 7—Have signs and symptoms of “None of the Above”? Think MCAS!
Jane Simmonds, MCSP, MMACP, FHEA
Physiotherapy and rehabilitation within the context of the multidisciplinary team

To register: please visit https://congresscare.com/congress/ehlers-danlos-syndrome-congress/

Due to limited availability at the location, registration is limited to 350 participants.

Agenda

Friday, 6 April
Conference Chair Dr. Emile Jansen

TimeActivity/SessionPresenter

09.00 – 09.15

Welcome & Introductions

Lara Bloom & Dr. Jansen

09.15 – 10.00

The rarer types of Ehlers-Danlos syndromes

Prof. Fransiska Malfait

10.00 – 10.45

Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders

Dr. Marco Castori

10.45 – 11.15

BREAK

 

11.15 – 12.00

Physiotherapy and rehabilitation within the context of the multidisciplinary team

Jane Simmonds

12.00 – 12.45

Gastrointestinal complications in EDS and HSD

Prof. Qasim Aziz

12.45 – 13.45

LUNCH

 

13.45 – 14.30

Headaches in the EDS population

Dr. Fraser C. Henderson

14.30 – 15.15

Autonomic dysfunction and fatigue

Dr. Alan Hakim

15.15 – 15.45

BREAK

 

15.45 – 16.30

The therapeutic value of identifying psychopathology in the EDS

Prof. Antonio Bulbena

16.30 – 17.15

Entangled Life at the Borders: Mast Cell Activation Syndrome and Connective Tissue Disorders

Dr. Anne Maitland

17.15 – 17.30

The international work of The Ehlers-Danlos Society

Lara Bloom

 


Saturday, 7 April
Conference Chair Dr. Emile Jansen

TimeActivity/SessionPresenter

09.00 – 09.15

Welcome & Introductions

Lara Bloom & Dr. Jansen

09.15 – 10.00

Hypermobile Ehlers-Danlos syndromes and hypermobility spectrum disorders

Dr. Marco Castori

10.00 – 10.30

BREAK

 

10.30 – 11.15

Physiotherapy and rehabilitation within the context of the multidisciplinary team

Jane Simmonds

11.15 – 12.00

Gastrointestinal complications in EDS and HSD

Prof. Qasim Aziz

12.00 – 12.45

2017 criteria: what do they mean for patients?

Lara Bloom

12.45 – 13.45

LUNCH

 

13.45 – 14.30

Headaches in the EDS population

Dr. Fraser C. Henderson

14.30 – 15.15

Autonomic dysfunction and fatigue

Dr. Alan Hakim

15.15 – 15.45

BREAK

 

15.45 – 16.15

Handling the subjective emotional dimensions in the EDS

Prof. Antonio Bulbena

16.15 – 17.00

Have signs and symptoms of “None of the Above”? Think MCAS!

Dr. Anne Maitland

17.00 – 17.15

Working together in a positive direction

Debbie Hellenbrand