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First ever disabled Corrie star to take on Great Manchester Run

by Rebecca Day, originally posted by Manchester Evening News on 16 April 2018 Cherylee Houston will join a team of wheelchair users to raise money for TripleC A Coronation Street star will join a team of wheelchair users at the start-line of the Great Manchester Run in May. Cherylee Houston, who plays Izzy Armstrong in […]
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Phedon Anderson

Phedon was only 22 when she died April 9, 2018. She was active, vibrant, outgoing, spunky, and soft=hearted. She had a sparkle to her and enjoyed dressing up. She loved her cats and animals. She was naturally talented musically, loved singing and cantabile. She had started an online support group for Ehlers-Danlos syndrome and would […]
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A New Type of Ehlers-Danlos Syndrome Discovered

A new, autosomal recessive type of Ehlers-Danlos syndrome has been discovered; it is very rare, so far found in only four individuals from three unrelated families. Exome sequencing (which looks at a subset of DNA—the genes that are responsible for proteins—and describes how those genes are assembled) revealed unusual variations in the AEBP1 gene. These […]
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Ehlers-Danlos Syndrome – Diagnosis makes a difference

by Carrie Johnson, originally published by the Arthritis and Osteoporosis Western Australia in the Autumn 2018 issue of Arthritis Today magazine Some of us are naturally more flexible than others, or hypermobile as the medical people describe it. For many, being hypermobile is not a big deal and may even offer advantages in certain sports and careers. […]
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