Awareness Month 2019 — Proclamations Challenge

May Awareness - Proclamation Challange

#myEDSchallenge  #myHSDchallenge

Make May 2019 officially EDS/HSD awareness month in your state, city, or other local government. Follow these easy steps, and use our handy template and tips to spread EDS/HSD awareness in your community!

Check the status of your country or state below. If a proclamation is already in progress, submit your information to be connected with the local group or individual from your state.

If your state or local government isn’t listed, then MAKE IT OFFICIAL! Let us know you are starting a challenge by completing this form.

Completed proclamations (blue)

British Columbia (Canada)
Illinois (US)
Iowa (US)
Michigan (US)
New Hampshire (US)
Oklahoma (US)
South Carolina (US)
Texas (US)

In process (yellow)

Jordan
London (UK)
Arizona (US)
California (US)
Piedmont CA (US)
Colorado (US)
Florida (US)
Jacksonville FL (US)
Georgia (US)
Louisiana (US)
Massachusetts (US)
Minnesota (US)
Missouri (US)
Nebraska (US)
New York (US)
Oregon (US)
Pennsylvania (US)
South Dakota (US)
Utah (US)
Logan UT (US)
Cache County UT (US)
Vermont (US)
West Virginia (US)

How To Get a Government Proclamation

Here are the most common steps to request a proclamation from the governor or mayor; however, some states and cities may vary regarding proclamation procedures.

1. Start by locating the appropriate state or city government website.

2. You may find a tab called “Mayor’s Page” or “Governor’s Page.” Also look for “Ceremonial” or “Forms” on the navigation menu.

3. If you do not see any of these, try using the site’s search feature with the word “proclamation.”

4. Another option is the website’s “Contact Us” link. This area allows you to write a brief message such as: How do I ask the governor to issue a proclamation declaring May 2019 Ehlers-Danlos Syndromes Awareness Month?

5. A staff person will probably reply and email a form to complete. Email the form back for an official signature.

6. If no form is available, use the proclamation template provided by The Ehlers-Danlos Society. Mail or email to the mayor’s or governor’s office along with a formal request from your state or district association.

7. Follow up with a phone call just to be sure your request arrived.

8. When you have confirmation that the proclamation has been signed, contact local media to suggest a news item, interview or photo with the mayor or governor and affiliate representatives.