Awareness Month 2019 — Templates

Join the Challenge 2019

Use these easy templates to ask friends and family to support your #myEDSchallenge/#myHSDchallenge and to help you reach your goals!  Just copy/paste the text below into your email or to social media, and then fill in the blanks with information about your challenge and your story.  Don’t forget to include the link to your fundraising page (copy/paste your page address), and use the handy template to thank your supporters also!  

Visit our Awareness Materials Page for more resources.



Help me help


Dear Friends and Family,

I have joined the challenge to spread awareness and raise funds for the Ehlers-Danlos syndromes for May Awareness Month by participating in the [___] to raise awareness and funds for The Ehlers-Danlos Society [in honor/memory of ___]. You can support me by donating to my fundraising page: ____. Together, even a small amount can make a huge difference!

{Insert Personal Story}

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that can affect multiple systems of the body. Symptoms often seen across all types are hypermobile joints, stretchy skin, and fragile tissues. Each case is unique, and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving, and improving the lives of, those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions. Our goal is world-wide awareness, and better quality of life for all who suffer from these conditions, regardless of geography.
Please support me as I overcome my challenges with [EDS/HSD] {to participate in the ____ OR help me honor ___ with my participation in the ___} and donate to my fundraising page: ____.

Thank you for your support,




Thank you for your gift!


Hi [Donor Name],

Thank you for your generous donation to The Ehlers-Danlos Society. You have made a gift that truly makes a difference. Donations to The Society are critical to our continued ability to raise awareness and visibility, of the Ehlers-Danlos syndromes and associated symptoms and conditions, among the general public, as well as advancing research and improving treatments. Your contribution supports our overall mission, to improve the lives of those living with EDS and HSD, and is sincerely appreciated. Thank you again for your generosity and support.

With deep gratitude,

[Your Fundraiser’s Name Will Automatically Go Here]

I just joined #myEDSchallenge to spread awareness of the Ehlers-Danlos syndromes by participating in <event/activity name>! Help me reach my goal to to improve the lives of all those living with EDS, world wide: <fundraising page address>