Madrid • Patients Day, 7 April 2019

The screening for the HEDGE Study (Hypermobile EDS Genetic Evaluation) will be held in Patio One by appointment only. Sessions listed in blue will be translated live into Spanish, German, French, Italian, and Dutch.

AGENDA

TIME
SESSION SPEAKER
ROOM
07.30
Registration opens
Patio Two/Three
08.30–09.00
Welcome & Society updates Lara Bloom & ANSEDH
09.00–10.00
Understanding EDS/HSD and the associated symptoms and conditions in 2019 Fransiska Malfait
10.00–10.15
BREAK
Exhibition Area
10.15–11.15
The gut and nutrition in EDS/HSD — diagnosis and management options Qasim Aziz
Patio Two/Three
 
11.15–12.00
No brain no gain — managing pain and dislocations Helen Cohen
12.00–13.00
LUNCH
El Prado
13.00–14.00
Breakout sessions
 
 
 
 
Children — keeping up at school physically, mentally and emotionally? Jane Simmonds
Patio Two/Three
Alexander Technique and Pilates Ann Rodiger & Jeannie Di Bon
Escudo
Rare forms of EDS — diagnosis and management Fransiska Malfait
Doblon
Mast cells & EDS/HSD Anne Maitland
Comendador
14.15–15.15
Breakout sessions
 
 
 
Alexander Technique and Pilates Ann Rodiger & Jeannie Di Bon
Escudo
Autonomic dysfunction Alan Hakim
Doblon
Mast cells & EDS/HSD Anne Maitland
Patio Two/Three
15.15–15.30
BREAK
Exhibition Area
15.30–16.15
Breakout sessions
 
 
 
 
Pelvic floor issues in EDS/HSD Thomas Chelimsky
Patio Two/Three
The gut and nutrition in EDS/HSD — diagnosis and management options Qasim Aziz
Escudo
Autonomic dysfunction Alan Hakim
Doblon
The spine, neck, and head in EDS/HSD Fraser Henderson
Comendador
16.15–17.00
Breakout sessions
 
 
 
The spine, neck, and head in EDS/HSD Fraser Henderson
Patio Two/Three
The gut and nutrition in EDS/HSD — diagnosis and management options Qasim Aziz
Escudo
Pelvic floor issues in EDS/HSD Thomas Chelimsky
Doblon
Physiotherapy practical tips Lies Rombaut
Comendador
17.00–17.45
Psychological issues in EDS/HSD Antonio Bulbena
Patio Two/Three

 
Schedule is subject to change without notice. Updated 4 April 2019.