The screening for the HEDGE Study (Hypermobile EDS Genetic Evaluation) will be held in Patio One by appointment only. Sessions listed in blue will be translated live into Spanish, German, French, Italian, and Dutch.
AGENDA
TIME | SESSION | SPEAKER | ROOM |
07.30 | Registration opens | Patio Two/Three | |
08.30–09.00 | Welcome & Society updates | Lara Bloom & ANSEDH | |
09.00–10.00 | Understanding EDS/HSD and the associated symptoms and conditions in 2019 | Fransiska Malfait | |
10.00–10.15 | BREAK | Exhibition Area | |
10.15–11.15 | The gut and nutrition in EDS/HSD — diagnosis and management options | Qasim Aziz | Patio Two/Three |
11.15–12.00 | No brain no gain — managing pain and dislocations | Helen Cohen | |
12.00–13.00 | LUNCH | El Prado | |
13.00–14.00 | Breakout sessions | ||
| Children — keeping up at school physically, mentally and emotionally? | Jane Simmonds | Patio Two/Three | |
| Alexander Technique and Pilates | Ann Rodiger & Jeannie Di Bon | Escudo | |
| Rare forms of EDS — diagnosis and management | Fransiska Malfait | Doblon | |
| Mast cells & EDS/HSD | Anne Maitland | Comendador | |
14.15–15.15 | Breakout sessions | ||
| Alexander Technique and Pilates | Ann Rodiger & Jeannie Di Bon | Escudo | |
| Autonomic dysfunction | Alan Hakim | Doblon | |
| Mast cells & EDS/HSD | Anne Maitland | Patio Two/Three | |
15.15–15.30 | BREAK | Exhibition Area | |
15.30–16.15 | Breakout sessions | ||
| Pelvic floor issues in EDS/HSD | Thomas Chelimsky | Patio Two/Three | |
| The gut and nutrition in EDS/HSD — diagnosis and management options | Qasim Aziz | Escudo | |
| Autonomic dysfunction | Alan Hakim | Doblon | |
| The spine, neck, and head in EDS/HSD | Fraser Henderson | Comendador | |
16.15–17.00 | Breakout sessions | ||
| The spine, neck, and head in EDS/HSD | Fraser Henderson | Patio Two/Three | |
| The gut and nutrition in EDS/HSD — diagnosis and management options | Qasim Aziz | Escudo | |
| Pelvic floor issues in EDS/HSD | Thomas Chelimsky | Doblon | |
| Physiotherapy practical tips | Lies Rombaut | Comendador | |
17.00–17.45 | Psychological issues in EDS/HSD | Antonio Bulbena | Patio Two/Three |
Schedule is subject to change without notice. Updated 4 April 2019.