2019 Ehlers-Danlos Society Global Learning Conference Nashville

EDS Global Learning Conference Nashville • July 30 – August 1, 2019
Professionals Day • August 2, 2019

Sheraton Music City Hotel
777 McGavock Pike, Nashville, TN 37214, USA

$299 early registration
(through April 30)
$349 regular registration
(through July 19)
$399 late/onsite registration
Junior Zebra $175
(ages 6-16)
$149 early registration
(through April 30)
$174 regular registration
(through July 19)
$199 late/onsite registration
Sheraton Music City Hotel special rate is $169 US per night.
Available for Friday, July 26, 2019 through Wednesday, August 7, 2019.
Last day to book this rate Monday, July 6, 2019.

SCHOLARSHIPS

Thanks to the generosity of donors, The Ehlers-Danlos Society will be providing a limited number of full-conference registration scholarships based on demonstrated need (a value of $299 each) to the 2019 EDS Global Learning Conference, July 30–August 1, in Nashville. Each applicant will receive one scholarship.

Registration includes all sessions; Tuesday night welcome reception; lunches on Wednesday and Thursday; and all networking refreshment breaks. The Society’s office will review applications as they are received until the deadline of May 1, noon ET. Final decisions and notifications will be made by May 17; please be patient. Those who applied but are not provided with a scholarship will be able to register until May 31 at the discounted early rate of $299. You will be notified directly of acceptance by email. If you are unable to attend, we ask that you inform the Society’s staff within seven days, to allow someone else to benefit from the scholarship.

To apply for a scholarship, visit https://goo.gl/forms/QuZH31hXMlp8PNXP2

Your donation to the fund is very welcome, and vital to the sustained growth of the scholarship program. Please choose “Conference Scholarships” from the drop-down menu labelled “Apply My Donation To” — and help someone with EDS come to Nashville.

QUESTIONS?

For questions about the conference, please get in touch with our Event Manager, Stacey Simmonds.

If you’re interested in sponsorship opportunities, please get in touch with our Development Director, Carissa Hocevar.

View our sponsor prospectus here and our sponsor agreement here.

CONFERENCE SPONSORS

Gold Sponsor

Silver Ring Splint logo

https://www.silverringsplint.com/

In 1974, occupational therapist Cynthia Garris was forced to take a new look at splint therapy – in that year, she was diagnosed with Rheumatoid Arthritis. While plastic splints were adequate for treating short-term trauma, they were not an ideal solution for lifetime wear. In 1985, she set out to design and manufacture a new series of splints that were both more effective and more attractive than the splints then in use. In the process, she revolutionized splint therapy.

Wearing SilverRing™ Splints removes the stigma of splinting and increases patient compliance. Patients experience positive reactions from others which improves their perspective on treatment.

Whether they need finger stability for hand-intensive work or for everyday tasks like cooking and holding a pencil, thousands of people have made SilverRing™ Splints a valued part of their everyday lives. SilverRing™ Splints encourage complete patient well-being, medically effective hand therapy and a positive self-image.

Bronze Sponsor

NYIT logo

https://www.nyit.edu

If you or a loved one suffers from Ehlers-Danlos syndrome (EDS), you need to find a comprehensive treatment center that will empower you and improve your well-being. At this center, you’ll learn about treatment options for EDS, and discover how EDS patients can improve their quality of life.

Our EDS program is available at the NYIT Academic Health Centers. As a progressive collaboration among physicians and health care professionals, we work to alleviate the physical limitations and debilitating symptoms of EDS.

Our integrated team works together across specialties to offer a variety of services to help evaluate and design individualized treatment programs.

Bronze Sponsor
Logo of The Mastocytosis Society

https://tmsforacure.org/

The Mastocytosis Society is a 501(c)3 nonprofit organization dedicated to supporting patients affected by Mastocytosis or Mast Cell Activation Diseases as well as their families, caregivers, and physicians through research, education, and advocacy.

The Mastocytosis Society, Inc. (TMS) was founded in 1995 by Bill Abbottsmith, Linda Buchheit, Olive Clayson, Iris Dissinger, Bill Hingst, and Joe Palk. The first support group meeting was held in Baltimore at the Inner Harbor in 1994 and was attended by Linda Buchheit and Bill Hingst. The second meeting was held the following year at Linda Buchheit’s home in Ohio. Fourteen members attended that year. Little did they know how fruitful their efforts would be and what a lifeline they would become as more and more patients joined each year.

Bronze Sponsor

Dysautonomia International logo

http://dysautonomiainternational.org/

Dysautonomia International is a 501(c)(3) non-profit organization run entirely by volunteers. Our volunteers include patients, family members, friends, physicians, researchers, and other health professionals. We have a Board of Directors, a Medical Advisory Board, and a Patient Advisory Board, as well as many other volunteers. Our main offices are in New York and Maryland, but we have volunteers all across the US and in several other countries.

We help organize events around the globe each October for Dysautonomia Awareness Month. We hold a large annual conference each summer during which dysautonomia patients, family members and experts from around the world to join together for a weekend of educational programming, fun social events, and grassroots dysautonomia advocacy. We educate medical professionals about autonomic disorders.

We fund medical research on POTS and work with researchers to speed up the pace of discovery. One theme that overlaps with all of our work is the need to involve patients in the process. We believe that patients who live with a chronic illness are great untapped source of knowledge. Throughout the year, we connect patients and families with one and other through email, social media and in-person events. We empower patients to become their own best advocate, and provide a platform for those who want to advocate for others.

Supporting Sponsor
CSF logo

https://www.dmorthotics.com/

DM Orthotics is a world leading creator of medical rehabilitation and sports performance products.

We provide elastomeric fabric, dynamic movement orthoses to over 25 countries, helping to improve the lives of people who face a range of physical challenges. We are dedicated to the research, development and evolution of our products, with the aim to constantly improve the lives of the people who use them.

Everything we create undergoes the highest levels of clinical and scientific testing to ensure that it works at an optimal level for our customers.

Our design and production process incorporates state-of-the-art technology with traditional tailoring. We take the most successful elements from new technology and traditional tailoring to produce individually custom-made dynamic movement orthoses that are unmatched in their function and quality.

We work towards a single goal – to improve function and encourage independence for the user.

Nashville skyline in black-and-white