2019 Nashville Speakers

Qasim Aziz, MBBS, FRCP, PhD

Gastroenterologist (UK)

“Lower GI Issues”
“Upper GI Issues”
“Gastrointestinal Issues”

Natalie Blagowidow, MD

Clinical Cytogenetics (USA)

“Pregnancy and Childbirth”

Lara Bloom

Executive Director, International


Maggie Buckley

Advocate (USA)

“Newly Diagnosed—Tips and Tricks”

Nigel Burrows, MD, FRCP

Dermatologist (UK)


Peter Byers, MD

Geneticist (USA)

“Vascular EDS”
“Living with Vascular EDS”

Sandra Aiken Chack

Chair, Board of Directors

Pradeep Chopra, MD, MHCM

Pain Management (USA)

“Living with Pain”

Daniel Clauw, MD

Anesthesiologist/Psychiatrist (USA)


Heidi Collins, MD

Physical Medicine and Rehab (USA)

“Diet and Supplements”
“How to Parent a Zebra”

Helen Cohen, MB, BCh, MRCP, PhD

Rheumatologist (UK)

“No Brain No Gain”
“Dislocations and Subluxations”

Larry Constant, Jr.

Advocate (USA)

“Rarer Types of EDS”

Inge De Wandele, PT, MT, PhD

Physiotherapy (Belgium)

“Physical Therapy Management”

Jeannie Di Bon, MA, PMA-CPT

Pilates & Rehabilitation Therapist (UK)

“Relax Your Stripes”

Clair Francomano, MD

Geneticist (USA)

“Classical EDS”
“Genetic Testing 101”
“Living with Classical EDS”
Professionals Day:
“Classical & Rarer Types EDS”

Rodney Grahame CBE, MD, FRCP, FACP, FRSA

Rheumatologist (UK)

“What a Patient with EDS Has the Right to Expect From Their Doctor: Why Aren’t They Getting It?”


Alan Hakim, MA, FRCP

Education Director

“HSD 101”
Professionals Day:
“Joint Manifestations”

Barby Halstead-Worrell

Advocate (USA)


Fraser C. Henderson, Sr., MD

Neurosurgeon (USA)

“Craniocervical Junction & Spinal Cord”


Jessica Huddleston, MA, MCJ, PhD

Certified Psychological Assistant (USA)

“Children’s Mental Health”


Rohith Jesudas, MD

Hematologist-Oncologist (USA)

“Bleeding & Bruising in EDS”

Kathleen L. Kane, Esq.

Lawyer (USA)


Petra Klinge, MD

Spinal Neurosurgeon (USA)

“Spinal Leak”

Christina M. Laukaitis, MD, PhD

Geneticist (USA)

Professionals Day: Genetic Testing

Netali Levi, DClinPsy

Clinical Psychologist (UK)

“Mental Health”

Howard Levy, MD, PhD

Geneticist (USA)

Professionals Day:
“hEDS and HSD”

Anne Maitland, MD, PhD

Mast Cell (USA)

“Mast Cell”

John Mitakides, DDS, DAACP



Kevin Muldowney, PT

Physical Therapist (USA)

“Muldowney Protocol”

Alan Pocinki, MD, FACP

Autonomic (USA)

“Chronic Fatigue”

Lauren Puryear, MS

Genetic counselor (USA)

“Genetic Considerations in Having Children”

Tom Query, MDiv, LPC

Professional Counselor (USA)


Satish R. Raj, MD, MSCI, FRCPC

Cardiology (USA/Canada)

“Autonomic Dysfunction”

Maggie Ridgely


“Navigating a Social Life”

Ann Rodiger, M.AmSAT

Alexander Technique (USA)

“Relax Your Stripes”
“Alexander Technique”

Jon Rodis

Advocate (USA)


Leslie Russek, PT, DPT, PhD, OCS


“Physical Therapy Management”
“Physiotherapy Management for Children”

Sherene Shalhub, MD, MPH, FACS

Vascular Surgeon (USA)

“Vascular Risks in EDS”
“Red Flags in vEDS”

Dr. Chad Shepherd

Clinical Psychologist (UK)

“Living with EDS and PTSD and Trauma”

Ellen Lenox Smith

Advocate (USA)

“Service Dogs”

Brad Tinkle, MD, PhD

Geneticist (USA)

“EDS 101”
“Child Protection and EDS”
“Bone Fragility in EDS”
Professionals Day:
Children and EDS


Jordan Tishler, MD

Cannabis Specialist (USA)


Anthony Vandersteen, MA, PhD, BM, FRCP

Geneticist (Canada)

“Living with a Rarer Type”

Shani Weber

Patient and Community Advisor

“Freshman Orientation”
“How to Raise Awareness and Be a Patient Advocate”
“Preparing for Your Doctor’s Appointment”

Schedule subject to change. Updated as of June 5, 2019.