Qasim Aziz, MBBS, FRCP, PhD Gastroenterologist (UK)“Lower GI Issues” “Upper GI Issues” “Gastrointestinal Issues” Natalie Blagowidow, MDClinical Cytogenetics (USA)“Pregnancy and Childbirth” Lara BloomExecutive Director, International Maggie BuckleyAdvocate (USA)“Newly Diagnosed—Tips and Tricks” Nigel Burrows, MD, FRCPDermatologist (UK)“Skin” Peter Byers, MDGeneticist (USA)“Vascular EDS” “Living with Vascular EDS” Sandra Aiken ChackChair, Board of Directors Pradeep Chopra, MD, MHCMPain Management (USA)“Living with Pain” Daniel Clauw, MDAnesthesiologist/Psychiatrist (USA)“Fibromyalgia” Heidi Collins, MDPhysical Medicine and Rehab (USA)“Diet and Supplements” “How to Parent a Zebra” Helen Cohen, MB, BCh, MRCP, PhDRheumatologist (UK)“No Brain No Gain” “Dislocations and Subluxations” Larry Constant, Jr.Advocate (USA)“Rarer Types of EDS” Inge De Wandele, PT, MT, PhDPhysiotherapy (Belgium)“Physical Therapy Management” Jeannie Di Bon, MA, PMA-CPTPilates & Rehabilitation Therapist (UK)“Relax Your Stripes” “Pilates” Clair Francomano, MDGeneticist (USA)“Classical EDS” “Genetic Testing 101” “Living with Classical EDS” Professionals Day: “Classical & Rarer Types EDS” Rodney Grahame CBE, MD, FRCP, FACP, FRSARheumatologist (UK)“What a Patient with EDS Has the Right to Expect From Their Doctor: Why Aren’t They Getting It?” Alan Hakim, MA, FRCPEducation Director“HSD 101” “EDS ECHO” Professionals Day: “Joint Manifestations” Barby Halstead-WorellAdvocate (USA)“Parents” Fraser C. Henderson, Sr., MDNeurosurgeon (USA)“Craniocervical Junction & Spinal Cord” Jessica Huddleston, MA, MCJ, PhDCertified Psychological Assistant (USA)“Children’s Mental Health” Rohith Jesudas, MDHematologist-Oncologist (USA)“Bleeding & Bruising in EDS” Kathleen L. Kane, Esq.Lawyer (USA)“Disability” Petra Klinge, MDSpinal Neurosurgeon (USA)“Spinal Leak” Christina M. Laukaitis, MD, PhDGeneticist (USA)Professionals Day: Genetic Testing Netali Levi, DClinPsyClinical Psychologist (UK)“Mental Health” Howard Levy, MD, PhDGeneticist (USA)Professionals Day: “hEDS and HSD” Anne Maitland, MD, PhDMast Cell (USA)“Mast Cell” John Mitakides, DDS, DAACPTMJ (USA)“TMJ” Kevin Muldowney, PTPhysical Therapist (USA)“Muldowney Protocol” Alan Pocinki, MD, FACPAutonomic (USA)“Chronic Fatigue” Lauren Puryear, MSGenetic counselor (USA)“Genetic Considerations in Having Children” Tom Query, MDiv, LPCProfessional Counselor (USA)“Partners” Satish R. Raj, MD, MSCI, FRCPCCardiology (USA/Canada)“Autonomic Dysfunction” Maggie Ridgely (USA)“Navigating a Social Life” Ann Rodiger, M.AmSATAlexander Technique (USA)“Relax Your Stripes” “Alexander Technique” Jon RodisAdvocate (USA)“Disability” Leslie Russek, PT, DPT, PhD, OCSPhysiotherapist“Physical Therapy Management” “Physiotherapy Management for Children” Sherene Shalhub, MD, MPH, FACSVascular Surgeon (USA)“Vascular Risks in EDS” “Red Flags in vEDS” Dr. Chad ShepherdClinical Psychologist (UK)“Living with EDS and PTSD and Trauma” Ellen Lenox SmithAdvocate (USA)“Service Dogs” Brad Tinkle, MD, PhDGeneticist (USA)“EDS 101” “Child Protection and EDS” “Bone Fragility in EDS” Professionals Day: Children and EDS Jordan Tishler, MDCannabis Specialist (USA)“Cannabis” Anthony Vandersteen, MA, PhD, BM, FRCPGeneticist (Canada)“Living with a Rarer Type” Shani WeberPatient and Community Advisor“Freshman Orientation” “How to Raise Awareness and Be a Patient Advocate” “Preparing for Your Doctor’s Appointment”Schedule subject to change. Updated as of June 5, 2019.