Qasim Aziz, MBBS, FRCP, PhD Gastroenterologist (UK) “Lower GI Issues” “Upper GI Issues” “Gastrointestinal Issues” Natalie Blagowidow, MD Clinical Cytogenetics (USA) “Pregnancy and Childbirth” Lara Bloom Executive Director, International Maggie Buckley Advocate (USA) “Newly Diagnosed—Tips and Tricks” Nigel Burrows, MD, FRCP Dermatologist (UK) “Skin” Peter Byers, MD Geneticist (USA) “Vascular EDS” “Living with Vascular EDS” Sandra Aiken Chack Chair, Board of Directors Pradeep Chopra, MD, MHCM Pain Management (USA) “Living with Pain” Daniel Clauw, MD Anesthesiologist/Psychiatrist (USA) “Fibromyalgia” Heidi Collins, MD Physical Medicine and Rehab (USA) “Diet and Supplements” “How to Parent a Zebra” Helen Cohen, MB, BCh, MRCP, PhD Rheumatologist (UK) “No Brain No Gain” “Dislocations and Subluxations” Larry Constant, Jr. Advocate (USA) “Rarer Types of EDS” Inge De Wandele, PT, MT, PhD Physiotherapy (Belgium) “Physical Therapy Management” Jeannie Di Bon, MA, PMA-CPT Pilates & Rehabilitation Therapist (UK) “Relax Your Stripes” “Pilates” Clair Francomano, MD Geneticist (USA) “Classical EDS” “Genetic Testing 101” “Living with Classical EDS” Professionals Day: “Classical & Rarer Types EDS” Rodney Grahame CBE, MD, FRCP, FACP, FRSA Rheumatologist (UK) “What a Patient with EDS Has the Right to Expect From Their Doctor: Why Aren’t They Getting It?” Alan Hakim, MA, FRCP Education Director “HSD 101” “EDS ECHO” Professionals Day: “Joint Manifestations” Barby Halstead-Worell Advocate (USA) “Parents” Fraser C. Henderson, Sr., MD Neurosurgeon (USA) “Craniocervical Junction & Spinal Cord” Jessica Huddleston, MA, MCJ, PhD Certified Psychological Assistant (USA) “Children’s Mental Health” Rohith Jesudas, MD Hematologist-Oncologist (USA) “Bleeding & Bruising in EDS” Kathleen L. Kane, Esq. Lawyer (USA) “Disability” Petra Klinge, MD Spinal Neurosurgeon (USA) “Spinal Leak” Christina M. Laukaitis, MD, PhD Geneticist (USA) Professionals Day: Genetic Testing Netali Levi, DClinPsy Clinical Psychologist (UK) “Mental Health” Howard Levy, MD, PhD Geneticist (USA) Professionals Day: “hEDS and HSD” Anne Maitland, MD, PhD Mast Cell (USA) “Mast Cell” John Mitakides, DDS, DAACP TMJ (USA) “TMJ” Kevin Muldowney, PT Physical Therapist (USA) “Muldowney Protocol” Alan Pocinki, MD, FACP Autonomic (USA) “Chronic Fatigue” Lauren Puryear, MS Genetic counselor (USA) “Genetic Considerations in Having Children” Tom Query, MDiv, LPC Professional Counselor (USA) “Partners” Satish R. Raj, MD, MSCI, FRCPC Cardiology (USA/Canada) “Autonomic Dysfunction” Maggie Ridgely (USA) “Navigating a Social Life” Ann Rodiger, M.AmSAT Alexander Technique (USA) “Relax Your Stripes” “Alexander Technique” Jon Rodis Advocate (USA) “Disability” Leslie Russek, PT, DPT, PhD, OCS Physiotherapist “Physical Therapy Management” “Physiotherapy Management for Children” Sherene Shalhub, MD, MPH, FACS Vascular Surgeon (USA) “Vascular Risks in EDS” “Red Flags in vEDS” Dr. Chad Shepherd Clinical Psychologist (UK) “Living with EDS and PTSD and Trauma” Ellen Lenox Smith Advocate (USA) “Service Dogs” Brad Tinkle, MD, PhD Geneticist (USA) “EDS 101” “Child Protection and EDS” “Bone Fragility in EDS” Professionals Day: Children and EDS Jordan Tishler, MD Cannabis Specialist (USA) “Cannabis” Anthony Vandersteen, MA, PhD, BM, FRCP Geneticist (Canada) “Living with a Rarer Type” Shani Weber Patient and Community Advisor “Freshman Orientation” “How to Raise Awareness and Be a Patient Advocate” “Preparing for Your Doctor’s Appointment” Schedule subject to change. Updated as of June 5, 2019.