2019 Nashville Speakers

Qasim Aziz, MBBS, FRCP, PhD
Gastroenterologist (UK)

“Lower GI Issues”
“Upper GI Issues”
“Gastrointestinal Issues”

Natalie Blagowidow, MD
Clinical Cytogenetics (USA)

“Pregnancy and Childbirth”

Lara Bloom
Executive Director, International


Maggie Buckley
Advocate (USA)

“Newly Diagnosed—Tips and Tricks”

Nigel Burrows, MD, FRCP
Dermatologist (UK)


Peter Byers, MD
Geneticist (USA)

“Vascular EDS”
“Living with Vascular EDS”

Sandra Aiken Chack
Chair, Board of Directors

Pradeep Chopra, MD, MHCM
Pain Management (USA)

“Living with Pain”

Daniel Clauw, MD
Anesthesiologist/Psychiatrist (USA)


Heidi Collins, MD
Physical Medicine and Rehab (USA)

“Diet and Supplements”
“How to Parent a Zebra”

Helen Cohen, MB, BCh, MRCP, PhD
Rheumatologist (UK)

“No Brain No Gain”
“Dislocations and Subluxations”

Larry Constant, Jr.
Advocate (USA)

“Rarer Types of EDS”

Inge De Wandele, PT, MT, PhD
Physiotherapy (Belgium)

“Physical Therapy Management”

Jeannie Di Bon, MA, PMA-CPT
Pilates & Rehabilitation Therapist (UK)

“Relax Your Stripes”

Clair Francomano, MD
Geneticist (USA)

“Classical EDS”
“Genetic Testing 101”
“Living with Classical EDS”
Professionals Day:
“Classical & Rarer Types EDS”

Rodney Grahame CBE, MD, FRCP, FACP, FRSA
Rheumatologist (UK)

“What a Patient with EDS Has the Right to Expect From Their Doctor: Why Aren’t They Getting It?”


Alan Hakim, MA, FRCP
Education Director

“HSD 101”
Professionals Day:
“Joint Manifestations”

Barby Halstead-Worrell
Advocate (USA)


Fraser C. Henderson, Sr., MD
Neurosurgeon (USA)

“Craniocervical Junction & Spinal Cord”


Jessica Huddleston, MA, MCJ, PhD
Certified Psychological Assistant (USA)

“Children’s Mental Health”


Rohith Jesudas, MD
Hematologist-Oncologist (USA)

“Bleeding & Bruising in EDS”

Kathleen L. Kane, Esq.
Lawyer (USA)


Petra Klinge, MD
Spinal Neurosurgeon (USA)

“Spinal Leak”

Christina M. Laukaitis, MD, PhD
Geneticist (USA)

Professionals Day: Genetic Testing

Netali Levi, DClinPsy
Clinical Psychologist (UK)

“Mental Health”

Howard Levy, MD, PhD
Geneticist (USA)

Professionals Day:
“hEDS and HSD”

Anne Maitland, MD, PhD
Mast Cell (USA)

“Mast Cell”

John Mitakides, DDS, DAACP


Kevin Muldowney, PT
Physical Therapist (USA)

“Muldowney Protocol”

Alan Pocinki, MD, FACP
Autonomic (USA)

“Chronic Fatigue”

Lauren Puryear, MS
Genetic counselor (USA)

“Genetic Considerations in Having Children”

Tom Query, MDiv, LPC
Professional Counselor (USA)


Satish R. Raj, MD, MSCI, FRCPC
Cardiology (USA/Canada)

“Autonomic Dysfunction”

Maggie Ridgely

“Navigating a Social Life”

Ann Rodiger, M.AmSAT
Alexander Technique (USA)

“Relax Your Stripes”
“Alexander Technique”

Jon Rodis
Advocate (USA)


Leslie Russek, PT, DPT, PhD, OCS

“Physical Therapy Management”
“Physiotherapy Management for Children”

Sherene Shalhub, MD, MPH, FACS
Vascular Surgeon (USA)

“Vascular Risks in EDS”
“Red Flags in vEDS”

Dr. Chad Shepherd
Clinical Psychologist (UK)

“Living with EDS and PTSD and Trauma”

Ellen Lenox Smith
Advocate (USA)

“Service Dogs”

Brad Tinkle, MD, PhD
Geneticist (USA)

“EDS 101”
“Child Protection and EDS”
“Bone Fragility in EDS”
Professionals Day:
Children and EDS


Jordan Tishler, MD
Cannabis Specialist (USA)


Anthony Vandersteen, MA, PhD, BM, FRCP
Geneticist (Canada)

“Living with a Rarer Type”

Shani Weber
Patient and Community Advisor

“Freshman Orientation”
“How to Raise Awareness and Be a Patient Advocate”
“Preparing for Your Doctor’s Appointment”

Schedule subject to change. Updated as of June 5, 2019.