The Ehlers-Danlos Society Global Learning Conference, Scottsdale, Arizona, Postponed until August 5-7, 2021
The Ehlers-Danlos Society regrets to announce that we have taken the decision to postpone our Global Learning Conference and HEDGE study screening, due to take place on July 9-11, 2020, in Scottsdale, Arizona. The wellbeing of our participants and our community is our top priority, and due to the current global situation with COVID-19 [Coronavirus] we are unable to run this event as scheduled.
The conference will now take place on August 5-7, 2021.This will be the first time we have not had an in-person Global Learning Conference, and we will look to see if we can run more virtual options to still bring our community together at this time. Please continue to check our website here, and social media platforms, for updates on having parts of this conference online.
We have rescheduled the conference for August, 2021. August 5-7, 2021, will be our Community Days for those living with EDS and HSD, and their family and friends. August 6, 2021, will be our Health Professionals Day which will run in parallel for health professionals only.
At this time we do not know if a HEDGE screening will run during the conference in 2021 as it is hoped enrolment will be complete by this time, however this is impossible to say currently with the COVID-19 crisis. We will continue to update the community on further opportunities to take part. All registrations will be automatically carried over to the new 2021 conference dates unless a refund is requested. Full event information, any virtual event announcements, FAQs, and contact information can be found below.
Scottsdale, Arizona Conference Frequently Asked Questions (FAQ)
Can I get a refund?
Yes, we can process a refund for you, or we can transfer your registration to the updated conference dates. If you cannot attend the conference on the new dates, we will refund you.
Do I have to register again for the new conference date?
Current registrations will be carried over if the new conference dates are suitable for you unless you request a refund.
Will the new conference be held in the same location, over the same amount of days?
Yes, the location will remain the same (JW Camelback Inn, Scottsdale, AZ) and the conference will run in the same planned pattern, over 3 consecutive days. August 5-7, 2021 will be Community Days, for those living with EDS and HSD, and their family and friends. August 6, 2021, will be Health Professionals Day which will run in parallel.
How do I cancel my travel tickets and hotel?
Please contact your travel provider and the hotel directly regarding your booking. Please check with your own credit card company and insurance company on their specific cancellation policies, in regards to getting your travel refunded.
I can’t yet decide if I want a refund or to carry over my registration. When is the deadline to decide?
You have up until July 1, 2021, at midnight EST to request a refund.
What if I bought a Ticket For ‘An Evening With Miss America’?
We will automatically issue you a refund for this. If you haven’t received a refund after 7 working days please email email@example.com to request one.
Who do I contact for further information?
Please email all further questions regarding this event to firstname.lastname@example.org
What happens if I have applied for a scholarship?
We will look to see if we can run more virtual options to still bring our community together at this time. Individuals who had applied for a scholarship will be offered a free place to attend whatever The Ehlers-Danlos Society hosts virtually and will be contacted via email.
We know situations change for our community, and in light of uncertainty with COVID-19, we will open a fresh round of scholarship applications for next year’s conference, and will announce the dates soon.
The Ehlers-Danlos Society Global Learning Conference
August 5-7, 2021
We are delighted to invite you to register for our Global Learning Conference in Scottsdale, Arizona, USA, taking place on August 5-7, 2021. Join us as leading experts present the latest research, management, and scientific information, on the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.
August 5-7, Community Days: conference days for individuals living with EDS and HSD, and their families. The Junior Zebras track will run alongside the main sessions and is for children and young people aged 6-17.
August 6, Health Professionals Day: a conference day running concurrently, for Health Professionals only.
Agendas for Community Days, Junior Zebras, and Health Professionals Day coming soon. The conference will take place at:
5402 E Lincoln Dr, Scottsdale, AZ 85253, United States
We have secured special discounted hotel accommodation rates for conference attendees. Click here to book your hotel room for The Global Learning Conference.
Conference Scholarships: Thanks to the generosity of donors, The Ehlers-Danlos Society will be granting a limited number of full-conference registration scholarships based on demonstrated need (a value of $349 each). Registration includes all sessions; lunch and two breaks on August 5, 6 and one break and a farewell lunch on August 7. Registrations and scholarships do not include travel, lodging, or meals apart from those specified. Applications will be open in the coming weeks.
Lunch Menus: The lunch menu for the conference can be found here.
Join our farewell dazzle! The Ehlers-Danlos Society is seeking people with EDS and HSD of any age who are interested in performing at the farewell dazzle of the 2021 EDS Global Learning Conference in Arizona. Click here to learn more.
Our Health Professionals Day is strictly for those currently working within the medical field, kindly note that patients and children are not permitted.
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