2020 Global Learning Conference – Arizona – Postponed Until 2021

Arizona conference postponed until 2021

Important Announcement

The Ehlers-Danlos Society Global Learning Conference, Scottsdale, Arizona, Postponed until August 5-7, 2021

The Ehlers-Danlos Society regrets to announce that we have taken the decision to postpone our Global Learning Conference and HEDGE study screening, due to take place on July 9-11, 2020, in Scottsdale, Arizona. The wellbeing of our participants and our community is our top priority, and due to the current global situation with COVID-19 [Coronavirus] we are unable to run this event as scheduled.

The conference will now take place on August 5-7, 2021.This will be the first time we have not had an in-person Global Learning Conference, and we will look to see if we can run more virtual options to still bring our community together at this time. Please continue to check our website here, and social media platforms, for updates on having parts of this conference online.

We have rescheduled the conference for August, 2021. August 5-7, 2021, will be our Community Days for those living with EDS and HSD, and their family and friends. August 6, 2021, will be our Health Professionals Day which will run in parallel for health professionals only.

At this time we do not know if a HEDGE screening will run during the conference in 2021 as it is hoped enrolment will be complete by this time, however this is impossible to say currently with the COVID-19 crisis. We will continue to update the community on further opportunities to take part. All registrations will be automatically carried over to the new 2021 conference dates unless a refund is requested. Full event information, any virtual event announcements, FAQs, and contact information can be found below.

Scottsdale, Arizona Conference Frequently Asked Questions (FAQ)

Can I get a refund?

Yes, we can process a refund for you, or we can transfer your registration to the updated conference dates. If you cannot attend the conference on the new dates, we will refund you.

Do I have to register again for the new conference date?

Current registrations will be carried over if the new conference dates are suitable for you unless you request a refund.  

Will the new conference be held in the same location, over the same amount of days?

Yes, the location will remain the same (JW Camelback Inn, Scottsdale, AZ) and the conference will run in the same planned pattern, over 3 consecutive days. August 5-7, 2021 will be Community Days, for those living with EDS and HSD, and their family and friends. August 6, 2021, will be Health Professionals Day which will run in parallel. 

How do I cancel my travel tickets and hotel? 

Please contact your travel provider and the hotel directly regarding your booking. Please check with your own credit card company and insurance company on their specific cancellation policies, in regards to getting your travel refunded. 

I can’t yet decide if I want a refund or to carry over my registration. When is the deadline to decide?

You have up until July 1, 2021, at midnight EST to request a refund.

What if I bought a Ticket For ‘An Evening With Miss America’?

We will automatically issue you a refund for this. If you haven’t received a refund after 7 working days please email events@ehlers-danlos.com to request one.

Who do I contact for further information?

Please email all further questions regarding this event to events@ehlers-danlos.com 

What happens if I have applied for a scholarship?

We will look to see if we can run more virtual options to still bring our community together at this time. Individuals who had applied for a scholarship will be offered a free place to attend whatever The Ehlers-Danlos Society hosts virtually and will be contacted via email.

We know situations change for our community, and in light of uncertainty with COVID-19, we will open a fresh round of scholarship applications for next year’s conference, and will announce the dates soon.

Register now for Arizona 2021

The Ehlers-Danlos Society Global Learning Conference

August 5-7, 2021
Scottsdale, Arizona

We are delighted to invite you to register for our Global Learning Conference in Scottsdale, Arizona, USA, taking place on August 5-7, 2021. Join us as leading experts present the latest research, management, and scientific information, on the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.

August 5-7, Community Days: conference days for individuals living with EDS and HSD, and their families. The Junior Zebras track will run alongside the main sessions and is for children and young people aged 6-17.

August 6, Health Professionals Day: a conference day running concurrently, for Health Professionals only.

Agendas for Community Days, Junior Zebras, and Health Professionals Day coming soon. The conference will take place at:

JW Marriott Scottsdale Camelback Inn Resort & Spa, 

5402 E Lincoln Dr, Scottsdale, AZ 85253, United States

We have secured special discounted hotel accommodation rates for conference attendees. Click here to book your hotel room for The Global Learning Conference.

Conference Scholarships: Thanks to the generosity of donors, The Ehlers-Danlos Society will be granting a limited number of full-conference registration scholarships based on demonstrated need (a value of $349 each). Registration includes all sessions; lunch and two breaks on August 5, 6 and one break and a farewell lunch on August 7. Registrations and scholarships do not include travel, lodging, or meals apart from those specified. Applications will be open in the coming weeks.

Lunch Menus: The lunch menu for the conference can be found here. 

Join our farewell dazzle! The Ehlers-Danlos Society is seeking people with EDS and HSD of any age who are interested in performing at the farewell dazzle of the 2021 EDS Global Learning Conference in Arizona. Click here to learn more.

Our Health Professionals Day is strictly for those currently working within the medical field, kindly note that patients and children are not permitted.

Questions? Please get in touch with Events Director, Stacey Simmonds, by clicking here.

Interested in becoming a conference sponsor? Please get in touch with Development Director, Carissa Hocevar, and read/download our sponsorship prospectus here and the commitment form here.

Conference Sponsors

Gold Sponsor

Silver Ring Splint logo

https://www.silverringsplint.com/

In 1974, occupational therapist Cynthia Garris was forced to take a new look at splint therapy – in that year, she was diagnosed with Rheumatoid Arthritis. While plastic splints were adequate for treating short-term trauma, they were not an ideal solution for lifetime wear. In 1985, she set out to design and manufacture a new series of splints that were both more effective and more attractive than the splints then in use. In the process, she revolutionized splint therapy.

Wearing SilverRing™ Splints removes the stigma of splinting and increases patient compliance. Patients experience positive reactions from others which improves their perspective on treatment.

Whether they need finger stability for hand-intensive work or for everyday tasks like cooking and holding a pencil, thousands of people have made SilverRing™ Splints a valued part of their everyday lives. SilverRing™ Splints encourage complete patient well-being, medically effective hand therapy and a positive self-image.

Gold Sponsor

NYIT logo

https://www.nyit.edu

If you or a loved one suffers from Ehlers-Danlos syndrome (EDS), you need to find a comprehensive treatment center that will empower you and improve your well-being. At this center, you’ll learn about treatment options for EDS, and discover how EDS patients can improve their quality of life.

Our EDS program is available at the NYIT Academic Health Centers. As a progressive collaboration among physicians and health care professionals, we work to alleviate the physical limitations and debilitating symptoms of EDS.

Our integrated team works together across specialties to offer a variety of services to help evaluate and design individualized treatment programs.

Supporting Sponsor
Avazzia

http://avazzia.com/

BEST technology, developed by Avazzia’s CEO Tim Smith, produces microcurrent electrical impulses, which are transmitted by electrodes in the device through the skin to communicate with the body’s nervous system. BEST products are controlled by a high-performance microcomputer chip, which uses Avazzia proprietary software

These hand-held devices are FDA-cleared for the symptomatic relief and management of chronic, intractable pain and adjunctive treatment in the management of post-surgical and post-traumatic pain (available by prescription only). These noninvasive neuro-stimulation devices allow patients to take control of their pain management.

Avazzia BEST (Bio-Electric Stimulation Technology) products feature a tissue reaction response indication, making them superior to traditional TENS units. BEST products work on different neural paths than a traditional TENS.

Healthcare providers – including physicians, dentists, chiropractors, physical therapists and athletic trainers – use these devices for their own pain management and with their patients.

Patients use Avazzia BEST technology to manage pain connected with chronic and acute pain; dental patients use Avazzia products to manage pain after tooth extractions; athletes – including college and professional athletes – use Avazzia BEST products to reduce pain associated with rehab and after injuries.

Avazzia has strategic alliances with research foundations and medical schools in the United States, India, Malaysia, Romania, and Taiwan and to perform clinical studies with BEST products. Avazzia has relationships with domestic and international distributors, clinics and professionals to market its products.

Avazzia was founded in January 2004 and incorporated in Texas in May 2004. All Avazzia BEST products are manufactured and serviced at Avazzia corporate headquarters in Texas.

Supporting Sponsor
CSF logo

https://bodybraid.com/

The foundation of the innovative Body Braid system, the Core Body Braid is a posture support strap constructed from soft, elastic fabric bands. When worn around your body, it helps to promote proper posture alignment and movement, enhance your mind-body connection, and relieve pain due to poor posture. This posture device feels great, training you to sit in a naturally relaxed and upright position. Simple to use, the Core Body Braid helps to improve back alignment and posture while sitting. It retrains your movement in a gentle manner, providing the support you need to move in healthy ways. Additional accessory straps allow you to adapt the Core Body Braid for use while walking and participating in activities such as yoga and dancing. Invented by a Canadian doctor, this innovative posture strap was created out of a desire to help people feel better in their bodies. Enjoy better posture and freedom of movement with the Body Braid.

Supporting Sponsor
DM Orthotics

https://www.dmorthotics.com/

DM Orthotics is a world leading creator of medical rehabilitation and sports performance products.

We provide elastomeric fabric, dynamic movement orthoses to over 25 countries, helping to improve the lives of people who face a range of physical challenges. We are dedicated to the research, development and evolution of our products, with the aim to constantly improve the lives of the people who use them.

Everything we create undergoes the highest levels of clinical and scientific testing to ensure that it works at an optimal level for our customers.

Our design and production process incorporates state-of-the-art technology with traditional tailoring. We take the most successful elements from new technology and traditional tailoring to produce individually custom-made dynamic movement orthoses that are unmatched in their function and quality.

We work towards a single goal – to improve function and encourage independence for the user.

Supporting Sponsor
Mayo Clinic

FLORIDA

https://www.mayoclinic.org/florida

At Mayo Clinic in Florida, innovative health care meets Southern hospitality. In the South, guests are treated like family. This Southern tradition extends to the Jacksonville campus of Mayo Clinic, where world-class providers and dedicated volunteers help you feel welcomed and comforted.

You may notice the Jacksonville campus is growing, as Mayo Clinic continues to add new facilities that will expand the options and services for patients. Combine that with Mayo’s cutting-edge care and clinical expertise, and you truly have care focused on you.

Every year, patients from more than 140 countries travel to Mayo Clinic for care. International patients receive timely diagnosis and specialty care in a place designed to feel a little more like home.