2020 May Awareness – Awareness Templates

2020 May EDS and HSD Awareness Month - Banner

Use these easy templates to ask friends and family to support your #myEDSchallenge | #myHSDchallenge and to help you reach your goals!  Just copy/paste the text below into your email or to social media, and then fill in the blanks with information about your challenge and your story.  Don’t forget to include the link to your fundraising page (copy/paste your page address), and use the handy template to thank your supporters also!  

Visit our Awareness Materials Page for more resources.

FUNDRAISER TEMPLATE FOR DONOR ASK

SUBJECT

Help me help


EMAIL BODY

Dear Friends and Family,

I have joined the challenge to spread awareness and raise funds for the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD) for May Awareness Month by participating in the [___] to raise awareness and funds for The Ehlers-Danlos Society [in honor/memory of ___]. You can support me by donating to my fundraising page: ____. Together, even a small amount can make a huge difference!

{Insert Personal Story}

Ehlers-Danlos syndromes (EDS) are a group of disorders that affect the body’s connective tissues including the skin, joints, blood vessels, gut, and many other organs and tissues. These disorders arise because of abnormal production and function of collagen and allied connective tissue proteins. EDS affects more than one in 5000 people, and both males and females of every age and race. It is a chronic, life-long condition.

The signs and symptoms of EDS are many, and vary between the different types. They may also vary between members of a family with the same type of EDS. The signs and symptoms include fragile skin with poor healing, bruising and bleeding, and abnormal scarring; ease of joint injury, widespread joint pain, dislocations, low muscle tone, and muscle contractures; abnormal musculoskeletal structure such as kyphoscoliosis, hip dysplasia, and short stature; changes in eye structure such as thinning of the cornea; abnormalities of the teeth and gums; and, in some of the rarer types life-threatening complications such as heart valve disease, rupture of organs, and aneurysm formation and rupture of major blood vessels.

Hypermobility Spectrum Disorder (HSD) is diagnosed when the musculoskeletal complications of joint hypermobility and joint instability (ease of injury, joint pain, and dislocations for example) arise in a person who does not have the defining features of an underlying syndrome such as EDS or other heritable disorders of connective tissue.

In addition, several related disorders are observed in a number of people with EDS and with HSD. These add complexity to the presentation of their condition and its management. Such related disorders include for example functional bowel disorders; autonomic dysfunction; severe chronic fatigue; neurological concerns including cord and nerve entrapment and sensory neuropathy; immune hypersensitivity; anxiety disorders and depression; and, ADHD.

The Ehlers-Danlos Society is a global community dedicated to saving, and improving the lives of, those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions. Our goal is world-wide awareness, and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with [EDS/HSD] {to participate in the ____ OR help me honor ___ with my participation in the ___} and donate to my fundraising page: ____.

Thank you for your support,

[YOUR NAME]

FUNDRAISER TEMPLATE FOR THANKING DONORS

SUBJECT

Thank you for your gift!


EMAIL BODY

Hi [Donor Name],

Thank you for your generous donation to The Ehlers-Danlos Society. You have made a gift that truly makes a difference. Donations to The Society are critical to our continued ability to raise awareness and visibility, of the Ehlers-Danlos syndromes and associated symptoms and conditions, among the general public, as well as advancing research and improving treatments. Your contribution supports our overall mission, to improve the lives of those living with EDS and HSD, and is sincerely appreciated. Thank you again for your generosity and support.

With deep gratitude,

[Your Name]

I just joined #myEDSchallenge to spread awareness of the Ehlers-Danlos syndromes by participating in <event/activity name>! Help me reach my goal to to improve the lives of all those living with EDS, world wide: <fundraising page address>