2020 Virtual Summer Conference

2020 Virtual Summer Conference

The Ehlers-Danlos Society 2020 Virtual Summer Conference

July 10-12, 2020

The Ehlers-Danlos Society and an exciting panel of leading experts from July 10-12, 2020, will present the latest research, management, and scientific information, on all the types of Ehlers-Danlos syndromes, hypermobility spectrum disorders, and associated symptoms and conditions. ⁠An exciting program will see presentations on topics including:

  • Living with rarer types of Ehlers-Danlos syndromes, and living with hEDS and HSD
  • Gynecology and Pregnancy
  • ENT and Dental
  • MCAS
  • Neurodiversity
  • Advocacy
  • Self-management
  • Autonomics
  • GI
  • Musculoskeletal issues

The entire event is aimed at the EDS and HSD community.

July 10 is a day focused on the rarer types of Ehlers-Danlos syndromes.

July 11-12 will see presentations for the EDS and HSD community, their families, and caregivers.

The conference will take place July 10-12, 2020, from 10:00 AM – 5:00 PM Eastern Daylight Time. Please use thetimezoneconverter.com to find the conference time in your timezone.

Click below to view the exciting conference program!

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Listen in your own language

To read in your preferred language, click below:

We delighted to announce that we will be offering live translations as part of our upcoming Virtual Summer Conference, 2020! For this conference, we will be offering French, Spanish, German, and Arabic audio channels which will run alongside each speaker’s presentation and all Q&A sessions. 

Making our conferences and resources more accessible worldwide is a long-term goal that we have to continue spreading awareness, and we hope to be able to offer an even larger range of translation services at future conferences. 

Miss America Q&A The Ehlers-Danlos Society 2020 Virtual Summer Conference

Q&A with Camille Schrier, Miss America!

We are delighted to announce that this event will include a Q&A session with Miss America, Camille Schrier!

Camille will be taking part in a 30-minute question and answer session, on Saturday, July 11, at 4:30pm ET (US & Canada), answering questions submitted by the community. This session, along with the 3-day virtual conference, will be live translated into French, German, Spanish, and Arabic. If you have ever wondered what goes into becoming Miss America, or the techniques that Camille uses to manage her EDS while traveling, then now is the time to ask. 

In 2018, Camille, who lives with Ehlers-Danlos syndrome, graduated with honors from Virginia Tech with dual Bachelor of Science degrees in Biochemistry and Systems Biology, and is currently pursuing a Doctor of Pharmacy at Virginia Commonwealth University.

In June of 2019, Camille was named Miss Virginia after breaking from tradition to perform the “catalytic decomposition of hydrogen peroxide” as her onstage talent.

Through 2020 Camille will use the Miss America national recognition to promote her own social impact initiative, Mind Your Meds: Drug Safety and Abuse Prevention from Pediatrics to Geriatrics. Camille has also been awarded the Engineering Champion Award by the Phi Sigma Rho National Sorority for her work in promoting women in engineering and technical fields.

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Take Part in Zebras Got Talent! 

We are delighted to invite all artists and creators to take part in “Zebras Got Talent” by submitting their work! Taking place during our Virtual Summer Conference, Zebras Got Talent is an online exhibition that will showcase the creativity of those in our community, at a time when we are hearing from leading experts present on all types of Ehlers-Danlos syndrome and hypermobility spectrum disorders. Your entries will be uploaded for conference attendees to view on our event app, Whova. The theme for this exhibition is “Living with EDS or HSD”, and the following categories are available for submissions: 

  • Visual Arts
  • Photography
  • Painting
  • Drawing
  • Music
  • Dance
  • Graphic Design
  • Dramatic Arts
  • Cooking

In addition to submitting your work for our exhibition, you will also have the opportunity to enter your work into an online competition that will take place for the duration of the Virtual Summer Conference, the winners of which will be voted by fellow event attendees. Voting for the competition will last for the duration of the full conference, opening at 10:00 am ET (US and Canada) on July 10, and the winners will be notified during the final presentation at 5:00 pm ET on July 12. We will be awarding prizes to the three entries with the highest votes and the prizes are as follows:

  • First place: Your entry will be published in The Ehlers-Danlos Society newsletter and across social media channels, and you will receive a 50% discount on any virtual or in-person Society event in 2020 or 2021.
  • Second place: Your entry will be published across The Ehlers-Danlos Society’s social media channels, and you will receive a 25% discount on any virtual or in-person Society event in 2020 or 2021.
  • Third place: Your entry will be published across The Ehlers-Danlos Society’s social media channels, and you will receive a 10% discount on any virtual or in-person Society event in 2020 or 2021.

Terms and conditions are listed on the Zebras Got Talent submission page.

Vote for The Ehlers-Danlos Society Awards 2020

The Ehlers-Danlos Society Awards

The Ehlers-Danlos Society Awards is an annual celebration of individuals who have made an impact and worked for change for those living with, and affected by, EDS, HSD, and related conditions. The award categories are as follows:

  • The Nancy Rogowski Advocate of the Year Award
  • Lifetime Achievement Award
  • Pioneer in EDS and HSD Clinical Care Award
  • Outstanding Consortium Member Award

The Ehlers-Danlos Society Awards 2020, will be presented at the 2020 Virtual Summer Conference, Sunday, July 12, at 4:40pm. Nominations for the awards must be made by midnight Eastern Time (US and Canada), June 30.

Register today and join us virtually, from anywhere in the world!

How will I be watching this event?  Ticket holders will watch the event live via Zoom Webinar. If you haven’t used Zoom before, you may click this link to sign up and download Zoom for free prior to the day of the event and familiarise yourself with any features you may need to use on the day – mute/unmute the microphone, chat, raise hand, etc. When attending the virtual event, we suggest you find a quiet space without interruptions or background noise.

How will I gain access to the Zoom Webinar? We will email you a link and password before the start which will allow you to access the event. Please take extra care to provide the correct email address when registering.

If I am attending for multiple days, will the Zoom link and password be different each day? Yes, each day will have a unique Zoom code and password which we will email to you.

What time will I be able to get access to the Zoom? We will allow registrants to join the virtual zoom meeting 30 minutes before the first session starts.

Do I need to have my video on and will everyone be able to see me? As this is a Zoom webinar, as opposed to a Zoom meeting, attendees do not need to have their camera on and will not be able to see themselves or the other attendees. You will only be able to see and hear the speaker/s.

How can I ask questions during the event? The Question & Answer (Q&A) feature on our Zoom webinars allows you to ask questions during the webinar for the panelists, speakers, co-hosts and hosts. We will have dedicated Q&A sessions throughout the event where we (EDS Society staff) will be asking the speakers your moderated questions on your behalf.

Do I need to attend every session? No, you may use the link and password to come and go as you please.

I am not very tech-savvy. Will there be online help if I run into issues during the event? Absolutely, our staff members will identify themselves at the start and you can direct any questions or technical issues to them at any time.

Can I chat with fellow attendees during the event? Yes, you can have online conversations with your fellow attendees via our event app, Whova. Full details will be emailed to you prior to the event.

How will I get my virtual ticket? Your virtual ticket will be sent electronically to you by email. We do not send paper tickets by post. If you cannot find your ticket please email events@ehlers-danlos.com and we will look up your reservation and resend you your ticket/s.

Is there an age limit? All are welcome to watch, although we request that attendees under the age of 18 are accompanied by a parent or guardian.

Will you record this event and when can I watch the recordings back? We will record all content from this event and give ticket holders access to these recordings 4 weeks before the general public. You will receive a password and link to view these by email after the event.

For a full list of FAQs please click here. For any further inquiries please contact event@ehlers-danlos.com


Sponsorships are available for this conference; please see our prospectus or contact the Development Office at giving@ehlers-danlos.com.