2022 Global Learning Conference Virtual Attendees

We are delighted to be offering the 2022 Global Learning Conference as a hybrid event, with a comprehensive virtual experience to allow community members and healthcare professionals to join us from around the world!

Join us from August 3-6 for an exciting, all-new agenda that includes topics and tracks covering pregnancy and childbirth, children and teenagers, sex and intimacy, and aging.⁠

Presentations will include: ⁠

◍ Living and Aging with EDS and HSD⁠
◍ Managing Deconditioning⁠
◍ The Muldowney Protocol: How it Works and Roadblocks to Progress⁠
◍ Facial pain and TMJ Disorders⁠
◍ The Role and Treatment of Autonomic Dysfunction in EDS-Associated Sleep Disorders⁠
◍ Tips and Tricks for Managing Autonomic Concerns⁠
◍ Managing Gastrointestinal Autonomic Complications⁠
◍ Breaking the Stigma Around Sex and Intimacy⁠
◍ Holistic Approaches to Care for Children & Adolescents with Hypermobility & EDS⁠

The full agenda can be viewed below.

21 CME/CEU/CE credits will be available for healthcare professionals to claim for sessions that are viewed LIVE.

Registration closes on August 2, at 11:59 pm Eastern Time (US and Canada).

Connect With Other Attendees!

Our free event app Whova allows you to have online conversations with in-person and virtual conference attendees, take part in polls, view the event agenda, and re-watch the sessions at a time that is most suitable for you. You can access the app via phone, tablet, or web browser.

For some useful tips on getting the most out of Whova, click here.

Ask The Speakers Your Questions Live

You will be watching the event live via Zoom. The question and answer (Q&A) feature on our Zoom webinar allows you to ask questions during the event to the session chairs, panelists, and speakers. We have dedicated Q&A sessions throughout the event where the session chairs will ask your moderated questions.

Questions for the Q&A sessions can also be posted via the Whova app under the relevant presentation and will be collated for session chairs. Learn more about the speakers for the GLC 2022! 

Enjoy Lifetime On-Demand Access to Presentation Recordings

All presentation recordings and PDFs from the Global Learning Conference will be recorded, and will be made available to event attendees around a week after the event. Attendees will have lifetime access to these resources. 

Vote for or take part in Zebras Got Talent

Taking place during our Global Learning Conference, Zebras Got Talent is a hybrid exhibition that showcases the creativity of those in our community!

Virtual entries can be submitted and they will be uploaded for conference attendees to view on our event app, Whova. Voting for the competition will last for the duration of the full conference, and we will be awarding prizes to the three entries with the highest votes.

The theme for this exhibition is “EDS or HSD Through a Lifetime.” We are inviting all artists and creators to take part by submitting their original work!

Submissions could include a talent of your choice such as:

  • Creative Writing (eg. poem, fictional story)
  • Painting
  • Drawing
  • Graphic Design
  • Photography
  • Dance
  • Video Performance
  • Music

Enter your talent here. Submissions close July 22.

The Grieving Project Virtual Workshop

We will be kicking off the 2022 Global Learning Conference with a powerful workshop from The Grieving Project.

We will be joined on Wednesday, August 3, by Lisa Sniderman, also known as Aoede, from The Grieving Project for a hands-on workshop on grieving a chronic illness diagnosis. This creative workshop is focused on grieving our losses, changes, and transformations around our chronic illnesses, intended for those living with chronic illness and disabilities, caregivers, and anyone who would like to explore using arts to move through grief.

Virtual attendees are invited to join at 1:30 pm Mountain Time on Wednesday, August 3. Please note this is a live workshop and it will not be recorded. 

Continuing Education credits available for healthcare professionals

Healthcare professionals including physicians, nurses, and allied health professionals, are welcome to join sessions both in-person and virtually, to learn more about EDS and HSD and how to improve the management and care for their patients. 21 CME/CEU/CE credits will be available for healthcare professionals to claim for sessions that are viewed LIVE.

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Project ECHO

In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO.  Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO

AMA Designation Statement

Project ECHO® designates this live activity for a maximum of 21 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement

Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Dr. Alan Hakim, Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Adrijana Kekic, Dr. Alan Pocinki, Dr. Chad Shepherd, Dr. Chip Norris, Dr. Christina Laukaitis, Constance O’Connor, Dr. Dacre Knight, Dr.Ellen Elias, Emily Block, Emily Rich, Dr. Heidi Collins, Dr. Irman Forghani, Dr. Isabelle Brock, Jacqui Main, Dr. Jane Simmonds, Jeannie Di Bon, Jennifer Glayzer, Dr. Jessica Salyers, Dr. John Heusinkveld, Dr. Jordan Tishler, Dr. Keren Machol, Laurie Bilyeu, Dr. Leslie Russek, Dr. Mark Lavallee, Prof. Martin Birchall, Maureen Kelly Galindo, Dr. Melissa Russo, Dr. Natalie Blagowidow, Natasha Silverman, Dr. Nimish Mittal, Dr. Paldeep Atwal, Patricia Stott, Dr. Patrick Agnew, Dr. Rebecca Schaffer, Dr. Sally Pezaro, Dr. Sarah Schwartz, Scarlett Eagle, Dr. Serwet Demirdas, Dr. Shar Hashemi, Sophie Roberts, Dr. Sumana Koduri, Dr. William Ericson, Emma-Louise Williams, Susan Hawkins.

The following planners/presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.

  Nature of Relationship Name of Ineligible Company
Dr. Anne Maitland Speaker Blueprint Medicines
Dr. Clair Francomano Consultant Acer Therapeutics
Dr. Hal Dietz Advisor, Individual Stocks and Stock Options, Nonexecutive Director Ownership Interest Aytu BioPharma, GlaxoSmithKline
Kevin Muldowney Ownership Interest Muldowney Publishing
Kathleen Muldowney Ownership Interest, Royalties, or Patent Beneficiary Muldowney Publishing
Dr. Laura Pace Advisor Mauna Kea
Dr. Gisela Chelimsky Ownership Interest PainStakers, LLC
Dr. David Saperstein Advisor, Speaker CSL-Behring, Argenyx, Grifols 
Dr. James Kustow Consultant, Speaker Flynn Pharma
Dr. Fraser Henderson Consultant LIFE SPINE Inc.

 

All of the relevant financial relationships listed for these individuals have been mitigated.

Thank You to Our Event Sponsors!

Partner Sponsor

Silver Ring Splint Company

In 1974, occupational therapist Cynthia Garris was forced to take a new look at splint therapy – in that year, she was diagnosed with Rheumatoid Arthritis. She had long believed in the value of splinting, but soon realized that none of the existing technologies addressed the long-term use of splints. While plastic splints were adequate for treating short-term trauma, they were not an ideal solution for lifetime wear. In 1985, she set out to design and manufacture a new series of splints that were both more effective and more attractive than the splints then in use. In the process, she revolutionized splint therapy.

Wearing SilverRing™ Splints removes the stigma of splinting and increases patient compliance. Patients experience positive reactions from others which improves their perspective on treatment.

Whether they need finger stability for hand-intensive work or for everyday tasks like cooking and holding a pencil, thousands of people have made SilverRing™ Splints a valued part of their everyday lives. SilverRing™ Splints encourage complete patient well-being, medically effective hand therapy and a positive self-image.

1140 E. Market St.
Charlottesville, VA 22902

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Aytu BioPharma

Aytu is committed to improving the health of all children. Our portfolio of products with a focus on ADHD help children live their best lives. Aytu is also developing potentially life-saving products by investing in a near-term pipeline of breakthrough treatments focused on pediatric-onset, rare diseases.

We aspire to be the leading pediatric-focused pharmaceutical company in the world. We will achieve this by commercializing novel therapeutics, providing best-in-class patient access, unleashing the talents of our people, and developing important and needed therapeutics for children of all ages.

  • We will make a lasting difference in children’s lives by delivering the best products to children in need.
  • Our individual actions, collective attitude, and company results will inspire others to do great things.
  • Our people, products, pipeline, and platform will effect positive change in healthcare delivery and patient outcomes.

373 Inverness Parkway, Suite 206
Englewood, CO 80112 USA
1-855 AYTU-BIO

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Partner Sponsor

DM Orthotics

We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
Clinically proven, comfortable orthosis with patient testimonials.
Our orthoses are clinically proven with some linked to evidence-based research. You can find out more about our research in our research & development section.
We are dedicated to research & development
We aspire to maintain our consistently high standards and are always looking ahead to see what advances can be made for the future, in order to continually find innovative developments for all our orthoses.

Unit 2,
Cardrew Way,
Redruth TR15 1SS
UK
+44 (0) 1209 219205 | admin@dmorthotics.com | https://www.dmorthotics.com/

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Collaborator Sponsor

Body Braid

The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.

767 Stone Church Road,
Killaloe,
Ontario K0J 2AO
Canada
(416) 804-2110 | info@bodybraid.com | https://bodybraid.com/

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Collaborator Sponsor

Thrive Tape

Thrive “Far Infrared” Kinesiology Tape is an elastic kinesiology tape made of a thin, elasticized 97% cotton and 3% spandex with an acrylic adhesive. It is latex free, hypo-allergenic, and it is designed to be worn through any activity, showering, or just resting 24 hours a day for up to 7 days.

 info@thrivetape.com | https://thrivetape.com/

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Supporter Sponsor

Zebra Splints

Each splint is carefully and precisely handcrafted to each individual’s exact measurements. With 20 years experience you can be assured that your splints will be beautifully created with both design and function in mind and must meet high quality standards.

 https://www.zebrasplints.org/

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Sponsorship Opportunities

Sponsorships are available for this conference, with virtual and in-person package options. Please see our sponsorship prospectus and commitment form, or contact our team directly on giving@ehlers-danlos.com to discuss sponsorship opportunities.