We are delighted to be offering the 2022 Global Learning Conference as a hybrid event, with a comprehensive virtual experience to allow community members and healthcare professionals to join us from around the world!
Join us from August 3-6 for an exciting, all-new agenda that includes topics and tracks covering pregnancy and childbirth, children and teenagers, sex and intimacy, and aging.
Presentations will include:
◍ Living and Aging with EDS and HSD
◍ Managing Deconditioning
◍ The Muldowney Protocol: How it Works and Roadblocks to Progress
◍ Facial pain and TMJ Disorders
◍ The Role and Treatment of Autonomic Dysfunction in EDS-Associated Sleep Disorders
◍ Tips and Tricks for Managing Autonomic Concerns
◍ Managing Gastrointestinal Autonomic Complications
◍ Breaking the Stigma Around Sex and Intimacy
◍ Holistic Approaches to Care for Children & Adolescents with Hypermobility & EDS
The full agenda can be viewed below.
21 CME/CEU/CE credits will be available for healthcare professionals to claim for sessions that are viewed LIVE.
Registration closes on August 2, at 11:59 pm Eastern Time (US and Canada).
Connect With Other Attendees!
Our free event app Whova allows you to have online conversations with in-person and virtual conference attendees, take part in polls, view the event agenda, and re-watch the sessions at a time that is most suitable for you. You can access the app via phone, tablet, or web browser.
For some useful tips on getting the most out of Whova, click here.
Ask The Speakers Your Questions Live
You will be watching the event live via Zoom. The question and answer (Q&A) feature on our Zoom webinar allows you to ask questions during the event to the session chairs, panelists, and speakers. We have dedicated Q&A sessions throughout the event where the session chairs will ask your moderated questions.
Questions for the Q&A sessions can also be posted via the Whova app under the relevant presentation and will be collated for session chairs. Learn more about the speakers for the GLC 2022!
Enjoy Lifetime On-Demand Access to Presentation Recordings
All presentation recordings and PDFs from the Global Learning Conference will be recorded, and will be made available to event attendees around a week after the event. Attendees will have lifetime access to these resources.
Vote for or take part in Zebras Got Talent
Taking place during our Global Learning Conference, Zebras Got Talent is a hybrid exhibition that showcases the creativity of those in our community!
Virtual entries can be submitted and they will be uploaded for conference attendees to view on our event app, Whova. Voting for the competition will last for the duration of the full conference, and we will be awarding prizes to the three entries with the highest votes.
The theme for this exhibition is “EDS or HSD Through a Lifetime.” We are inviting all artists and creators to take part by submitting their original work!
Submissions could include a talent of your choice such as:
- Creative Writing (eg. poem, fictional story)
- Graphic Design
- Video Performance
Enter your talent here. Submissions close July 22.
The Grieving Project Virtual Workshop
We will be kicking off the 2022 Global Learning Conference with a powerful workshop from The Grieving Project.
We will be joined on Wednesday, August 3, by Lisa Sniderman, also known as Aoede, from The Grieving Project for a hands-on workshop on grieving a chronic illness diagnosis. This creative workshop is focused on grieving our losses, changes, and transformations around our chronic illnesses, intended for those living with chronic illness and disabilities, caregivers, and anyone who would like to explore using arts to move through grief.
Virtual attendees are invited to join at 1:30 pm Mountain Time on Wednesday, August 3. Please note this is a live workshop and it will not be recorded.
Continuing Education credits available for healthcare professionals
Healthcare professionals including physicians, nurses, and allied health professionals, are welcome to join sessions both in-person and virtually, to learn more about EDS and HSD and how to improve the management and care for their patients. 21 CME/CEU/CE credits will be available for healthcare professionals to claim for sessions that are viewed LIVE.
In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 21 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.
None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.
Dr. Alan Hakim, Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Adrijana Kekic, Dr. Alan Pocinki, Dr. Chad Shepherd, Dr. Chip Norris, Dr. Christina Laukaitis, Constance O’Connor, Dr. Dacre Knight, Dr.Ellen Elias, Emily Block, Emily Rich, Dr. Heidi Collins, Dr. Irman Forghani, Dr. Isabelle Brock, Jacqui Main, Dr. Jane Simmonds, Jeannie Di Bon, Jennifer Glayzer, Dr. Jessica Salyers, Dr. John Heusinkveld, Dr. Jordan Tishler, Dr. Keren Machol, Laurie Bilyeu, Dr. Leslie Russek, Dr. Mark Lavallee, Prof. Martin Birchall, Maureen Kelly Galindo, Dr. Melissa Russo, Dr. Natalie Blagowidow, Natasha Silverman, Dr. Nimish Mittal, Dr. Paldeep Atwal, Patricia Stott, Dr. Patrick Agnew, Dr. Rebecca Schaffer, Dr. Sally Pezaro, Dr. Sarah Schwartz, Scarlett Eagle, Dr. Serwet Demirdas, Dr. Shar Hashemi, Sophie Roberts, Dr. Sumana Koduri, Dr. William Ericson, Emma-Louise Williams, Susan Hawkins.
The following planners/presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.
|Nature of Relationship||Name of Ineligible Company|
|Dr. Anne Maitland||Speaker||Blueprint Medicines|
|Dr. Clair Francomano||Consultant||Acer Therapeutics|
|Dr. Hal Dietz||Advisor, Individual Stocks and Stock Options, Nonexecutive Director Ownership Interest||Aytu BioPharma, GlaxoSmithKline|
|Kevin Muldowney||Ownership Interest||Muldowney Publishing|
|Kathleen Muldowney||Ownership Interest, Royalties, or Patent Beneficiary||Muldowney Publishing|
|Dr. Laura Pace||Advisor||Mauna Kea|
|Dr. Gisela Chelimsky||Ownership Interest||PainStakers, LLC|
|Dr. David Saperstein||Advisor, Speaker||CSL-Behring, Argenyx, Grifols|
|Dr. James Kustow||Consultant, Speaker||Flynn Pharma|
|Dr. Fraser Henderson||Consultant||LIFE SPINE Inc.|
All of the relevant financial relationships listed for these individuals have been mitigated.
Thank You to Our Event Sponsors!
Silver Ring Splint Company
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We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
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The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.
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Thrive “Far Infrared” Kinesiology Tape is an elastic kinesiology tape made of a thin, elasticized 97% cotton and 3% spandex with an acrylic adhesive. It is latex free, hypo-allergenic, and it is designed to be worn through any activity, showering, or just resting 24 hours a day for up to 7 days.
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