2022 International Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
September 14-18, 2022
In-person in Rome, Italy with virtual attendance options

The International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) is a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed. The International Consortium on EDS and HSD is bringing together leading experts, clinicians, and scientists in the field of EDS and HSD for a high-quality, scientific program with a focus on Translational Medicine in EDS and HSD – from Basic Science to Community.

Who can attend this event?

This event is for health professionals. We strongly encourage clinicians and researchers to attend this meeting – the multidisciplinary nature of the conference provides an opportunity to talk to specialists from many different fields including basic scientists, geneticists, internists, orthopedic and vascular surgeons, dentists, pediatricians, physiotherapists, genetic counselors, nurses, and others working with EDS and HSD.

Highlights will include:

An exciting program of invited speakers and lectures featuring some of the world’s leading experts in the field
An exhibition area and poster sessions
Gala dinner

This event has been approved for up to 23.5 CME/CEU/CE Credits, which will be available for health professionals to claim for sessions that are viewed LIVE.

September 18 is Community Day.

Sunday, September 18, is EDS & HSD Untangled: Ask the Experts.

Who can attend this event?

EDS & HSD Untangled: Ask the Experts is suitable for members of the EDS and HSD community, their families, and caregivers.

Healthcare Professionals who wish to learn from a lay perspective are also encouraged to join us for Community Day.

Listen In Your Own Language!

Presentations will be made in English. We are pleased to be offering live simultaneous translations of this event to all event attendees, the languages offered will be Italian, French, and Spanish.

Venue Details

The Roma Eventi – Fontana di Trevi Conference Centre is situated in the heart of Rome, a short walk from The Quirinale and the Fontana di Trevi (Trevi Fountain).

Location name and address:

Roma Eventi
Fontana di Trevi, Piazza della Pilotta 4
Rome, 00187 IT


Please note: Accommodations are entirely your own risk and responsibility. The Ehlers-Danlos Society is in no way affiliated with the third-party accommodations list, and The Society will not be liable for any issues you encounter before, during, or after your stay. You must contact the properties directly for any inquiries, including changes, cancellations, or other requests.

Hotel Virgilio
Via Palermo 30, Rione Monti, 00184 Rome, Italy
Approximate Walking Distance
13 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$175 USD

Hotel Hiberia
Via XXIV Maggio 7, Trevi, 00187 Rome, Italy
Approximate Walking Distance
6 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$198 USD

Albergo Delle Regioni, Barberini
via Zucchelli 1/C, Barberini – Fontana di Trevi, 00187 Rome, Italy
Approximate Walking Distance
8 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$195 USD

Hotel 55 – Maison d’Art Collection
13 Via della Vite, Spagna, 00187 Rome, Italy
Approximate Walking Distance
9 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$225 USD

Hotel 53 Cinquantatre
Via Di San Basilio 53, Trevi, 00187 Rome, Italy
Approximate Walking Distance
12 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$135 USD

Hotel Memphis
Via degli Avignonesi, 36/A, 00187 Rome, Italy
Approximate Walking Distance
12 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$198 USD


In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO.  Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO

AMA Designation Statement
Project ECHO® designates this live activity for up to 23.5 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an eligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Dr. Cecilia Giunta, Dr. Marco Castori, Dr. Marina Colombi, Prof. Fransiska Malfait, Dr. Alan Hakim, Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Antonio Bulbena-Vilarrasa, Dr. Carmine Settembre, Dr. Carolina Baeza Velasco, Dr. Chip Norris, Dr. Chloe Angwin, Dr. Christina Kaufman, Dr. Christina Laukaitis, Dr. Delfien Syx, Dr. Emily Casanova, Dr. Fleur van Dijk, Dr. Frances Yeung, Dr. Glenda Sobey, Jess Bowen, Dr. Helen Cohen, Dr. Hyo-Jung Jeong, Dr. Jane Simmonds, Dr. Janine Meienberg, Dr. Jared Fletcher, Jeannie Di Bon, Dr. Jessica Eccles, Dr. Johannes Zschocke, Dr. Katja Kovacic, Laura Prigent, Dr. Leema Robert, Dr. Leonardo Zoccante, Lies Rombaut, Lisanne de Koning, Lorna Ryan, Dr. Lucia Micale, Dr. Marco Ritelli, Dr. Mariana Castells, Dr. Marianne Rohrbach, Dr. Marlies Colman, Matt Bolz-Johnson, Dr. Michael Frank, Dr. Najla Alsiri, Niamh Wilkinson, Dr. Raoul Engelbert, Dr. Raymond Dalgleish, Robin Vroman, Roy Morello, Prof. Shea Palmer, Dr. Sherene Shalhub, Sophie Roberts, Dr. Taylor Petrucci, Dr. Verity Pacey, Vincent Guinchat, Dr. Yoshihiro Ishikawa, Bonnie Nasar, Muhammed Maarj, Laurie Bilyeu, Helen Spriggs

The following planners / presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.

Nature of Relationship Name of Ineligible Company
Dr. Laura Pace Advisor Mauna Kea Technologies
Dr. Matthew Hamilton Advisor Inveniai, Blueprint, Allakos, Brigham and Women’s Hospital
Dr. Louise Tofts Advisor, Researcher Biomarin
Dr. Hal Dietz Consultant Aytu Biopharma, GlaxoSmithKline
Dr. Tomoki Kosho Other BML Inc., Life Technologies Japan Ltd. of Thermo Fisher Scientific Inc.
Dr. Anthony Vandersteen Advisor Novartis
Prof. Qasim Aziz Other, Researcher, Executive Role, Individual Stocks and Stock Options, Ownership Interest Clasado Pharma, My Health Chart, Takeda
Dr. Clair Francomano Consultant, Advisor Acer Therapeutics, Kyani International
Dr. Gisela Chelimsky Ownership Interest PainStakers LLC
Dr. Joel Hirschhorn Consultant, Other Camp4 Therapeutics, Pfizer
Marc Thomas Schoenholzer Employee Biogen Austria GmbH
Dr. Robert Rosenbaum Other BML Inc., Life Technologies Japan Ltd. of Thermo Fisher Scientific Inc.
Dr. Peter Byers Employee, Advisor University of Washington, Aytu Pharmaceutical
Dr. Isabelle Brock Executive Role Qolify
Dr. James Kustow Consultant, Speaker Flynn Pharma

All of the relevant financial relationships listed for these individuals have been mitigated.

Thank You to Our Event Sponsors!

Partner Sponsor

Aytu BioPharma

Aytu is committed to improving the health of all children. Our portfolio of products with a focus on ADHD help children live their best lives. Aytu is also developing potentially life-saving products by investing in a near-term pipeline of breakthrough treatments focused on pediatric-onset, rare diseases.

We aspire to be the leading pediatric-focused pharmaceutical company in the world. We will achieve this by commercializing novel therapeutics, providing best-in-class patient access, unleashing the talents of our people, and developing important and needed therapeutics for children of all ages.

We will make a lasting difference in children’s lives by delivering the best products to children in need.
Our individual actions, collective attitude, and company results will inspire others to do great things.
Our people, products, pipeline, and platform will effect positive change in healthcare delivery and patient outcomes.

373 Inverness Parkway, Suite 206
Englewood, CO 80112 USA
1-855 AYTU-BIO


Collaborator Sponsor

DM Orthotics

We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
Clinically proven, comfortable orthosis with patient testimonials.
Our orthoses are clinically proven with some linked to evidence-based research. You can find out more about our research in our research & development section.
We are dedicated to research & development
We aspire to maintain our consistently high standards and are always looking ahead to see what advances can be made for the future, in order to continually find innovative developments for all our orthoses.

Unit 2,
Cardrew Way,
Redruth TR15 1SS
+44 (0) 1209 219205 | admin@dmorthotics.com | https://www.dmorthotics.com/


Collaborator Sponsor

Lipedema Foundation

Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms that occurs almost exclusively in women. It is a common but underrecognized disorder. Lipedema may cause pain, swelling, and easy bruising and be accompanied by an unusual texture within the fat that can feel like rice, peas, or walnuts beneath the surface of the skin.

At the Lipedema Foundation, we support collaborative research that addresses the basic biology, genetics, and epidemiology of lipedema with a mission to define, diagnose and develop treatments.

Please visit our website lipedema.org to learn more about the Lipedema Foundation.

39 Lewis Street,
4th FloorGreenwich,
CT 06830
+1-203-489-2989 | info@lipedema.org

Collaborator Sponsor

Body Braid

The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.

767 Stone Church Road,
Ontario K0J 2AO
(416) 804-2110 | info@bodybraid.com | https://bodybraid.com/


Sponsorship Opportunities

Sponsorships are available for this conference, with virtual and in-person package options. Please see our sponsorship prospectus and commitment form, or contact our team directly on giving@ehlers-danlos.com to discuss sponsorship opportunities.

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