2022 International Scientific Symposium Community Expert Application

As part of the agenda for our 2022 International Scientific Symposium on The Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders, we are looking for members of the community to participate as Community Experts. If you are selected to participate, your role will entail being interviewed by a healthcare professional about living with one of these issues, live during the event. You and the healthcare professional who is interviewing you will be briefed on the interview questions beforehand. The interview will last up to 30 minutes, then we will open to questions from the audience for 30 minutes. We hope to give the audience insight into both the doctor and community perspective of these topics through these Community Expert segments. 

Community Experts can participate in-person or virtually, and must be attending the event to be considered. Complete the application form below if you would like to take part.

How are you planning to attend the International Scientific Symposium?*
You must be attending to be considered to be a community expert at this event
Which type of EDS or HSD are you diagnosed with?*
If you have a type of EDS other than hEDS or HSD, do you have a genetically confirmed diagnosis?*
Which topic would you like to speak about?*
Choose all that apply.
I hereby authorize The Ehlers-Danlos Society to publish my Community Expert segment, recorded by me, or a member of The Ehlers-Danlos Society staff, for use in The Ehlers-Danlos Society’s print, online, and video-based publications.
I hereby release and hold harmless The Ehlers-Danlos Society from any reasonable expectation of privacy or confidentiality associated with the content specified above.
I further acknowledge that my participation is voluntary and that I will not receive financial compensation of any type associated with the taking or publication of the submitted content in Ehlers-Danlos Society marketing materials or other Ehlers-Danlos Society publications. I acknowledge and agree that publication of said content confers no rights of ownership or royalties whatsoever.
I hereby release The Ehlers-Danlos Society, its contractors, its employees, and any third parties involved in the creation or publication of informational or marketing materials, and from liability for any claims by me or any third party in connection with my participation.
This field is for validation purposes and should be left unchanged.