Simposio Científico Internacional sobre los Síndromes de Ehlers-Danlos (SED) y los Trastornos del Espectro de Hiperlaxitud (TEH)

Simposio Científico Internacional sobre los Síndromes de Ehlers-Danlos (SED) y los Trastornos del Espectro de Hiperlaxitud (TEH) 

14-18 de septiembre de 2022 

En persona en Roma, Italia con opciones de asistencia virtual 

El Simposio Científico Internacional sobre los Síndromes de Ehlers-Danlos (EDS) y los Trastornos del Espectro de Hipermovilidad (TEH) es una reunión de vanguardia en la que se presentarán nuevas investigaciones sobre los avances clínicos y los mecanismos moleculares y patogénicos que subyacen al SED y los síndromes relacionados discutido. El Consorcio Internacional sobre SED y TEH está reuniendo a expertos, médicos y científicos líderes en el campo de SED y TEH para un programa científico de alta calidad con un enfoque en la Medicina Traslacional en SED y TEH, desde la Ciencia Básica hasta la Comunidad. 

¿Quién puede asistir a este evento? 

Este evento es para profesionales de la salud. Recomendamos encarecidamente a los médicos e investigadores que asistan a esta reunión: la naturaleza multidisciplinaria de la conferencia brinda la oportunidad de hablar con especialistas de muchos campos diferentes, incluidos científicos básicos, genetistas, internistas, cirujanos ortopédicos y vasculares, dentistas, pediatras, fisioterapeutas, asesores genéticos, enfermeras y otras personas que trabajan con SED y TEH. 

Los puntos destacados incluirán: 

  • Un emocionante programa de presentadores invitados y conferencias con algunos de los principales expertos mundiales en el campo 
  • Zona de exposiciones y sesiones de pósters 
  • Talleres de trabajo 
  • Cena de gala 

Este evento ha sido aprobado por hasta 23,5 créditos CME/CEU/CE, que estarán disponibles para que los profesionales de la salud los reclamen por sesiones que se vean EN VIVO. 

El 18 de septiembre es el Día de la Comunidad. 

El domingo 18 de septiembre es SED y TEH desenredado: Pregúnteles a los expertos (EDS & HSD Untangled: Ask the Experts). 

¿Quién puede asistir a este evento? 

SED y TEH desenredado: Pregúnteles a los expertos es adecuado para miembros de la comunidad SED y TEH, sus familias y cuidadores. 

También se alienta a los profesionales de la salud que deseen aprender desde una perspectiva laica a unirse a nosotros para el Día de la Comunidad. 

¡Escuche En Su Propio Idioma! 

Las presentaciones se realizarán en inglés. Nos complace ofrecer traducciones simultáneas en vivo de este evento a todos los asistentes al evento, los idiomas ofrecidos serán italiano, francés y español. 

Detalles del lugar 

El Centro de Conferencias Roma Eventi – Fontana di Trevi está situado en el corazón de Roma, a pocos pasos del Quirinale y de la Fontana di Trevi (Fuente de Trevi). 

Nombre y dirección de la ubicación: 

Roma Eventi
Fontana di Trevi, Piazza della Pilotta 4
Rome, 00187 IT 

ALOJAMIENTO CERCANO A LA SEDE 

Tenga en cuenta: los alojamientos están completamente bajo su propio riesgo y responsabilidad. La Sociedad de Ehlers-Danlos no está afiliada de ninguna manera con la lista de alojamiento de terceros, y la Sociedad no será responsable de ningún problema que encuentre antes, durante o después de su estadía. Debe comunicarse con las propiedades directamente para cualquier consulta, incluidos cambios, cancelaciones u otras solicitudes. 

Hotel Virgilio
Via Palermo 30, Rione Monti, 00184 Rome, Italy
Approximate Walking Distance
13 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$175 USD


Hotel Hiberia
Via XXIV Maggio 7, Trevi, 00187 Rome, Italy
Approximate Walking Distance
6 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$198 USD


Albergo Delle Regioni, Barberini
via Zucchelli 1/C, Barberini – Fontana di Trevi, 00187 Rome, Italy
Approximate Walking Distance
8 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$195 USD

Hotel 55 – Maison d’Art Collection
13 Via della Vite, Spagna, 00187 Rome, Italy
Approximate Walking Distance
9 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$225 USD


Hotel 53 Cinquantatre
Via Di San Basilio 53, Trevi, 00187 Rome, Italy
Approximate Walking Distance
12 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$135 USD


Hotel Memphis
Via degli Avignonesi, 36/A, 00187 Rome, Italy
Approximate Walking Distance
12 mins
Approximate Price Per Room Per Night (updated June 6 2022)
$198 USD

EDS ECHO

In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO.  Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO

AMA Designation Statement
Project ECHO® designates this live activity for up to 23.5 AMA PRA Category 1 CreditsTMPhysicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an eligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Dr. Cecilia Giunta, Dr. Marco Castori, Dr. Marina Colombi, Prof. Fransiska Malfait, Dr. Alan Hakim, Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Antonio Bulbena-Vilarrasa, Dr. Carmine Settembre, Dr. Carolina Baeza Velasco, Dr. Chip Norris, Dr. Chloe Angwin, Dr. Christina Kaufman, Dr. Christina Laukaitis, Dr. Delfien Syx, Dr. Emily Casanova, Dr. Fleur van Dijk, Dr. Frances Yeung, Dr. Glenda Sobey, Jess Bowen, Dr. Helen Cohen, Dr. Hyo-Jung Jeong, Dr. Jane Simmonds, Dr. Janine Meienberg, Dr. Jared Fletcher, Jeannie Di Bon, Dr. Jessica Eccles, Dr. Johannes Zschocke, Dr. Katja Kovacic, Laura Prigent, Dr. Leema Robert, Dr. Leonardo Zoccante, Lies Rombaut, Lisanne de Koning, Lorna Ryan, Dr. Lucia Micale, Dr. Marco Ritelli, Dr. Mariana Castells, Dr. Marianne Rohrbach, Dr. Marlies Colman, Matt Bolz-Johnson, Dr. Michael Frank, Dr. Najla Alsiri, Niamh Wilkinson, Dr. Raoul Engelbert, Dr. Raymond Dalgleish, Robin Vroman, Roy Morello, Prof. Shea Palmer, Dr. Sherene Shalhub, Sophie Roberts, Dr. Taylor Petrucci, Dr. Verity Pacey, Vincent Guinchat, Dr. Yoshihiro Ishikawa, Bonnie Nasar, Muhammed Maarj, Laurie Bilyeu, Helen Spriggs

The following planners / presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company. 

 

  Nature of Relationship Name of Ineligible Company
Dr. Laura Pace Advisor Mauna Kea Technologies
Dr. Matthew Hamilton Advisor Inveniai, Blueprint, Allakos, Brigham and Women’s Hospital
Dr. Louise Tofts Advisor, Researcher Biomarin
Dr. Hal Dietz Consultant Aytu Biopharma, GlaxoSmithKline
Dr. Tomoki Kosho Other BML Inc., Life Technologies Japan Ltd. of Thermo Fisher Scientific Inc.
Dr. Anthony Vandersteen Advisor Novartis
Prof. Qasim Aziz Other, Researcher, Executive Role, Individual Stocks and Stock Options, Ownership Interest Clasado Pharma, My Health Chart, Takeda
Dr. Clair Francomano Consultant, Advisor Acer Therapeutics, Kyani International
Dr. Gisela Chelimsky Ownership Interest PainStakers LLC
Dr. Joel Hirschhorn Consultant, Other Camp4 Therapeutics, Pfizer
Marc Thomas Schoenholzer Employee Biogen Austria GmbH
Dr. Robert Rosenbaum Other BML Inc., Life Technologies Japan Ltd. of Thermo Fisher Scientific Inc.
Dr. Peter Byers Employee, Advisor University of Washington, Aytu Pharmaceutical
Dr. Isabelle Brock Executive Role Qolify
Dr. James Kustow Consultant, Speaker Flynn Pharma

All of the relevant financial relationships listed for these individuals have been mitigated.

Thank You to Our Event Sponsors!

Partner Sponsor

Aytu BioPharma

Aytu is committed to improving the health of all children. Our portfolio of products with a focus on ADHD help children live their best lives. Aytu is also developing potentially life-saving products by investing in a near-term pipeline of breakthrough treatments focused on pediatric-onset, rare diseases.

We aspire to be the leading pediatric-focused pharmaceutical company in the world. We will achieve this by commercializing novel therapeutics, providing best-in-class patient access, unleashing the talents of our people, and developing important and needed therapeutics for children of all ages.

  • We will make a lasting difference in children’s lives by delivering the best products to children in need.
  • Our individual actions, collective attitude, and company results will inspire others to do great things.
  • Our people, products, pipeline, and platform will effect positive change in healthcare delivery and patient outcomes.

373 Inverness Parkway, Suite 206
Englewood, CO 80112 USA
1-855 AYTU-BIO

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Collaborator Sponsor

DM Orthotics

We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
Clinically proven, comfortable orthosis with patient testimonials.
Our orthoses are clinically proven with some linked to evidence-based research. You can find out more about our research in our research & development section.
We are dedicated to research & development
We aspire to maintain our consistently high standards and are always looking ahead to see what advances can be made for the future, in order to continually find innovative developments for all our orthoses.

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Redruth TR15 1SS
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+44 (0) 1209 219205 | admin@dmorthotics.com | https://www.dmorthotics.com/

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Collaborator Sponsor

Lipedema Foundation

Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms that occurs almost exclusively in women. It is a common but underrecognized disorder. Lipedema may cause pain, swelling, and easy bruising and be accompanied by an unusual texture within the fat that can feel like rice, peas, or walnuts beneath the surface of the skin.  

At the Lipedema Foundation, we support collaborative research that addresses the basic biology, genetics, and epidemiology of lipedema with a mission to define, diagnose and develop treatments. 

Please visit our website lipedema.org to learn more about the Lipedema Foundation. 

39 Lewis Street,
4th FloorGreenwich,
CT 06830
USA
+1-203-489-2989 | info@lipedema.org

Collaborator Sponsor

Body Braid

The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.

767 Stone Church Road,
Killaloe,
Ontario K0J 2AO
Canada
(416) 804-2110 | info@bodybraid.com | https://bodybraid.com/

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Oportunidades de patrocinio 

Los patrocinios están disponibles para esta conferencia, con opciones de paquetes virtuales y en persona. Consulte nuestro folleto de patrocinio y formulario de compromiso, o comuníquese directamente con nuestro equipo en giving@ehlers-danlos.com para analizar las oportunidades de patrocinio. 

DISCLAIMER: This page is a translation of the original in English for information purposes only. In case of a discrepancy, the English original will prevail. Thank you to Paulina who helped to translate this event information.