Published: 09/03/2016 Tags: Ehlers-Danlos in the News

£50k Needed For Sick Sister Who Has ‘Lost All Will And Hope’

A COMMITTED big sister has launched a fundraising campaign with the hopes of securing a life changing experience for her little sister who suffers from a painful and incurable generic disorder.

Mother-of-two, Joy Cowie-Caesar launched her appeal on fundraising platform, GoFundMe, on behalf of her 25-year-old sister Ebony-Hope who was diagnosed with three types of Ehlers-Danlos Syndrome (EDS) in 2009.

The young woman who has been ravaged by the illness since the age of 14 has struggled to establish a quality of life, her big sister claimed.

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