Published: 09/03/2016 Tags: Ehlers-Danlos in the News

£50k Needed For Sick Sister Who Has ‘Lost All Will And Hope’

A COMMITTED big sister has launched a fundraising campaign with the hopes of securing a life changing experience for her little sister who suffers from a painful and incurable generic disorder.

Mother-of-two, Joy Cowie-Caesar launched her appeal on fundraising platform, GoFundMe, on behalf of her 25-year-old sister Ebony-Hope who was diagnosed with three types of Ehlers-Danlos Syndrome (EDS) in 2009.

The young woman who has been ravaged by the illness since the age of 14 has struggled to establish a quality of life, her big sister claimed.

Read the complete original article

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society mailing list