Doubling Our Donors' Impact with the Holiday Matching Grant Challenge!

Doubling Our Donors’ Impact with the Holiday Matching Grant Challenge! We’re thrilled to share that, until January 31st, an anonymous donor (whose family understands the journey of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) will match our supporter’s generous donations of up to $300,000. Their support now means double the progress!

EDS ECHO Summit: Emergency Care

The EDS ECHO summit on Emergency Care is a virtual event focused on addressing the unique challenges and considerations in providing emergency care for individuals with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). The sessions cover a wide range of topics to enhance awareness, preparedness, and effective management during emergencies.

What is EDS?

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

What is HSD?

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.

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