ANSEDH – Asociación Nacional de Síndromes de Ehlers-Danlos e Hiperlaxitud (Spain)
Las Torres de Cotillas, Murcia, Spain
About this Group
Our mission is to support, represent and guarantee quality health and social care for people affected by Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD).
At ANSEDH you will find a community of affected people who have gone through the same thing as you and who will be able to offer you emotional support as well as information and resources.
Only by being united, betting on training and joining efforts will we advance in improving health and quality of life in the SED and TEH.
About us
With the name ANSEDH, National Association of Ehlers-Danlos Syndrome, Hypermobility and Collagenopathy, it is constituted as a non-profit Association, of National scope and full capacity to act.
The registered office is located in Murcia.
Purposes of the Association:
- Raise awareness among public opinion and public and private institutions about the problems that this disease causes in patients, families and society.
- Stimulate and promote scientific research into Ehlers-Danlos Syndrome and its consequences.
- Cooperate with entities that aim to improve the quality of life of people with reduced mobility resulting from it.
- Promote the grouping of people affected by these diseases or interested personally or professionally in them, to work in a coordinated manner in the search for solutions.
- Cooperate internationally with associations and those affected by hypermobility and/or Ehlers-Danlos Syndrome.
- Get the earliest diagnosis from healthcare professionals.
Meeting Schedule
Virtual meetings for members who need psychological support, are led by a psychologist and take place once a month.
- Charity Organization
- Global Alliance Member
- This group holds virtual support groups
