Bundesverband Ehlers-Danlos-Selbsthilfe e.V.(Federal Association of Ehlers-Danlos Self-Help)
About this Group
We are a nationwide self-help association for people with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) in Germany.
In 2006, a small group of EDS sufferers and some of their relatives had the vision to share their experiences and knowledge with like-minded people. This resulted in the formation of the Bundeverband der Ehlers-Danlos-Selbsthilfe e.V. – a nationally active and recognized self-help association.
We offer an online meeting called zebra zoom on the third Saturday of every month. For more information on how to sign up, visit our website.
- Charity Organization
- Support Group
- This group holds in-person meetings
- This group holds virtual meetings