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Bundesverband Ehlers-Danlos-Selbsthilfe e.V.(Federal Association of Ehlers-Danlos Self-Help)


+49-151-40-31-46-40 https://www.bundesverband-eds.de https://www.youtube.com/channel/UCB2g1revO_7cA6YPmJI_4Kw

About this Group

We are a nationwide self-help association for people with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) in Germany.

In 2006, a small group of EDS sufferers and some of their relatives had the vision to share their experiences and knowledge with like-minded people. This resulted in the formation of the Bundeverband der Ehlers-Danlos-Selbsthilfe e.V. – a nationally active and recognized self-help association.

Meeting Schedule

We offer an online meeting called zebra zoom on the third Saturday of every month. For more information on how to sign up, visit our website.

  • Charity Organization
  • Support Group
  • Affiliate
  • This group holds in-person meetings
  • This group holds virtual meetings

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