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About this Group

The purpose of this association is to:
• Inform and enlighten the general public about Ehlers-Danlos syndrome
• Contribute to disseminating information on screening and methods of treatment for Ehlers-Danlos syndrome
• Provide information, advice, and support for people with Ehlers-Danlos syndrome and their families.

Meeting Schedule

Our meetings take place on Teams and are in Luxemburgish. 3-4 times per year we meet in person at different meeting places.

• Support Group
• Global Alliance Member
• This group holds in-person meetings
• This group holds virtual meetings