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Ehlers-Danlos foreningen i Danmark

Glejbjerg, Denmark

+45-7194-7959 https://www.ehlersdanlos.dk https://www.instagram.com/ehlersdanlosforeningen/

About this Group

The Ehlers-Danlos Association was founded in 1996 with the aim of giving people suffering from Ehlers-Danlos syndrome and their relatives an opportunity to exchange experiences about living with Ehlers-Danlos syndrome. The association has over 700 members and is the second-largest association in Denmark under Rare Diagnoses.

Why do we do this?
To protect the interests of our members and help them to get the rightful help to live an equal life. We do this because we have a combined knowledge and experience in the field that is difficult to get elsewhere.

How do we do it?
• We offer members knowledge, sharing and association guidance
• We offer members relevant events and constantly develop the association
• We work to ensure a healthy economy together and, where possible, to support research into the disease
• We spread awareness of Ehlers-Danlos syndrome at the Social and Health Service, members, relatives and future members

Meeting Schedule

Each year we have:
• Annual course
• Family weekend
• 2 regional meetings
• Welcome meetings

We also hold theme days, youth weekends, and summer camps.

  • Support Group
  • Affiliate
  • This group holds in-person meetings

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