Ehlers-Danlos Netz Schweiz (Ehlers-Danlos Net Switzerland)

About this Group

We are of the opinion that an interdisciplinary and widely interwoven network of affected persons, researchers and therapists can contribute to a broad understanding and acceptance of the of the Ehlers-Danlos syndromes. We want to give practical help in everyday situations to those affected and to specialists and encourage an exchange of ideas.

What does Ehlers-Danlos Network Switzerland do?
• Raises awareness and promotes acceptance of EDS with professional information, experience reports, and informative links
• Clarifies and communicates information and research on the variety of problems of those affected by EDS
• Helps those with EDS in everyday situations with practical experience

Meeting Schedule

There is a list of support groups in Switzerland on our website: http://ehlers-danlosnetzschweiz.blogspot.com/p/selbsthilfegruppe.html

• Charity Organization
• Support Group
• Global Alliance Member
• This group holds in-person meetings