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Ehlers-Danlos Syndrome Canada

Toronto, Canada


About this Group

Ehlers-Danlos Syndrome Canada:

• Provides knowledge, advocacy, and support to individuals and their families living with Ehlers-Danlos Syndrome
• Strives to be a bridge between patients and care providers by offering informative, purposeful medical resources for patients and the medical community
• Provides a confidential and supportive environment to develop lasting friendships within the community
• Unites EDSers by providing peer to peer, online, regional community support groups and social events
• Works to cultivate change for the EDS community coast to coast
• Builds a network to empower individuals in the various regions across Canada
• Engages policy makers to affect change for the optimal quality health care for Canadians with EDS and related symptoms

Meeting Schedule

Meetings are held every month, virtually during the pandemic.

  • Charity Organization
  • This group holds virtual meetings

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