[email protected] https://www.ehlers-danlos.org.nz https://www.facebook.com/EDSNewZealand https://www.facebook.com/groups/365357600311532
Ehlers-Danlos Syndromes New Zealand
About this Group
Our mission is to improve the wellbeing of those with the Ehlers-Danlos syndromes and hypermobility spectrum disorders in Aotearoa New Zealand by raising awareness, improving knowledge by healthcare professionals, and providing support to patients.
Our vision is to have an Aotearoa New Zealand where all people with the Ehlers-Danlos syndromes and hypermobility spectrum disorders receive an early diagnosis, proper treatment, care, and support.
- Charity Organization
- Support Group
- This group holds virtual meetings
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