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Hacking Hypermobility

National - US, United States

/ https://www.hackinghypermobility.com/ https://www.instagram.com/hackinghypermobility/ https://www.youtube.com/channel/UC77bi8SlAh-ZsX4z6b3cpTw https://www.tiktok.com/@hackinghypermobility

About this Group

Hacking Hypermobility is a Podcast collaboration and passion project by two EDS patients, Luna and Shelli. We advocate to bring awareness to the community and all are welcome.

Luna is a hypermobile human and momma passionate about bringing visibility to the Ehlers-Danlos syndromes to encourage earlier intervention, give voice to our need for further medical research in understanding and treating connective tissue disorders, advocate for the awareness of comorbid neurodivergence, and find ways to improve the quality of our lives, to leave a healthier legacy for her daughter.

We explore the health and wellness concerns of people on the hypermobility spectrum from diagnosis to management, asking those on the forefront of research and treatment how to help people on the hypermobility and connective tissue disorder spectrum including the Ehlers-Danlos Syndromes.

We speak loudly so fewer of us get diagnosed with these genetic conditions too late in life and so more of us can be proactive earlier in our health.

  • Support Group
  • This group holds virtual support groups

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