Riksförbundet Ehlers-Danlos Syndrom
About this Group
Riksförbundet Ehlers-Danlos syndrome is a non-profit patient organization for those who have or suspect that they have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD). We also welcome relatives and other interested parties and would like to see more support members.
The association works to improve care, conditions and everyday life for everyone with EDS / HSD. We do this through advocacy work nationally, in the healthcare regions, locally, and through collaboration with professionals. We arrange activities in the form of member meetings with lectures, coffee meetings and annual member and family weekends. Our membership magazine regularly reaches our members and stakeholders, in paper form or digitally.
The association also has local associations in Skåne, Småland, Västernorrland, the Umeå region, Västra Götaland, Värmland, Stockholm and Uppsala as well as a number of non-profit contact persons around the country. These people can be contacted if you have thoughts and concerns about EDS and HSD. They also help organize local membership meetings.
On our website there is a calendar for various activities and a special member page for our members
- Charity Organization
- Support Group
- This group holds in-person meetings
- This group holds virtual meetings
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