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San Diego Ehlers Danlos Support Group

San Diego, California, United States


About this Group

Our San Diego and surrounding areas EDS and HSD Support Group is currently operating on a virtual basis at this time.

This support group meeting is public. We welcome those holding/seeking a diagnosis, caregivers, family, friends, and domestic partners of all kinds, and teens or children so long as they do not disrupt the sharing of the group. We also welcome people with similar connective tissue disorders, since we can certainly find enough in common to connect.

The San Diego EDS Support Group has bimonthly meetings. We provide support through both in-person and Zoom meetings. One-on-one meetings are available as needed for those who can’t make our scheduled meeting times who are in need of urgent support via phone. Our closed Facebook group serves as a space in which members can share their stories and get to know each other asynchronously. In this Facebook group, we also provide access to a member compiled list of EDS and HSD familiar physicians and specialists in our area to aid in finding quality care for our community members. We focus on raising awareness and keeping everyone connected with the most up-to-date resources.

For time-sensitive inquiries please contact Michelle via [email protected]

Meeting Schedule

Meetings take place on the 2nd and 3rd Sundays of every month from 1 PM – 3 PM via Zoom until further notice. The schedule will remain the same for in-person meetings.

  • Support Group
  • Affiliate
  • This group holds in-person meetings
  • This group holds virtual meetings

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