San Diego Ehlers Danlos Support Group
San Diego, California, United States
About this Group
This support group meeting is public. We welcome those holding/seeking a diagnosis, caregivers, family, friends, and domestic partners of all kinds, and teens or children so long as they do not disrupt the sharing of the group. We also welcome people with similar connective tissue disorders, since we can certainly find enough in common to connect.
The San Diego EDS Support Group has bimonthly meetings. We provide support through both in-person and Zoom meetings. One-on-one meetings are available as needed for those who can’t make our scheduled meeting times who are in need of urgent support via phone. Our closed Facebook group serves as a space in which members can share their stories and get to know each other asynchronously. In this Facebook group, we also provide access to a member-compiled list of EDS and HSD familiar physicians and specialists in our area to aid in finding quality care for our community members. This list is a work in progress and depends upon members adding to it. We focus on raising awareness and keeping everyone connected with the most up-to-date resources.
To join the Facebook group, please go to https://www.facebook.com/groups/859634470742363 and request to join. Be sure to answer the membership questions and agree to the group rules or your request will be denied. Also, we can only accept those living in San Diego County. There is a So Cal group that may be helpful if you’re not in San Diego County, https://www.facebook.com/groups/597291173736129
Meeting Schedule
In-person meetings take place on the 2nd Sunday of every month from 1 PM – 3 PM at Sharp Hospital in the Sharp Memorial Outpatient Pavilion, 3075 Health Center Way, San Diego CA. Please find a way to RSVP if you plan to attend. Either by responding to the invite in the Facebook group (see the Events tab), or by emailing us at the email provided in this listing.
A virtual support group meeting is held on the 4th Sunday of every month from 1pm – 3pm on Zoom. Members of the Facebook group will be invited each month and asked to please RSVP if possible.
- Support Group
- Global Alliance Member
- This group holds in-person meetings
- This group holds virtual meetings
