Sofias Helping Hand Corp
National - US, United States
About this Group
People with EDS, MCAS, POTS, EOE, Syringomyelia, and Scoliosis are often unheard or overlooked. I want to bring attention to these disorders and make sure that kids that struggle with these disorders or other invisible disorders are not in it alone. I work hard on educating people of these disorders, and I am currently participating in clinics related to these disorders to help find answers and maybe one day a cure.
I started this non-profit organization to help kids cope with stressful and scary disorders. My first project is to donate zebras to kids diagnosed with EDS or other connective tissue disorders. I have also created support groups for these children and their parents. As the charity grows, I hope to help with wheelchairs or other medical equipment they may need. After helping the EDS community, I will move on to care packages for pediatric infusion patients and others dealing with difficult diseases.
- Charity Organization
- Support Group
- This group holds in-person meetings
- This group holds virtual meetings