The Swedish National Ehlers-Danlos Association
Sundbyberg, Sweden
About this Group
The Swedish National Ehlers-Danlos Association (in Swedish “Riksforbundet Ehlers-Danlos syndrom”) is a nation-wide civil society organization founded in 1992. We work with information, education, advocacy, fundraising and support in order to strengthen the rights of individuals with EDS, HSD and associated conditions. We have local chapters around the country and, since April 2024, an office in Stockholm. Most of our members are persons diagnosed with EDS or HSD but we also welcome family members, health professionals and other individuals who want to support our cause.
- Charity Organization
- This group holds in-person meetings
- This group holds virtual meetings
- This group holds in-person support groups
- This group holds virtual support groups
