List Your Support Group Or Organization On Our Website

This form is for those who currently run a support group or charity/nonprofit organization that serves the EDS and HSD community and would like to be listed on the Ehlers-Danlos Society’s website. Please provide as much information as possible.  

 To find existing support groups and organizations in your area, please see the current listings. To find local healthcare professionals please see our Healthcare Professionals Directory. For questions about managing EDS/HSD please contact our Helpline. For questions about starting a support group or charity/nonprofit organization please contact Shani Weber at