Affiliates, Support Groups, and Charities

The Ehlers-Danlos Society provides listings of support groups and charities, many of whom have joined the Society’s Global Affiliate Program. Please choose your geographic region below.

We strive to increase awareness, improve care, and grow community support for those around the world living with Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related disorders. Hundreds of local support groups and charities are working hard to help those with EDS and HSD in their communities throughout the world.

The Ehlers-Danlos Society also collaborates through our Global Affiliation Network to expand outreach, programming, and collaborative efforts with outstanding regional and local support groups, charities, and societies. These affiliates work toward a future where everyone living with EDS, HSD, and related disorders can receive the care and support they need through wider awareness in the medical and general communities, expanded research efforts, and improved medical care. 

To join the Society’s Global Affiliate Program, please visit the program’s information page. To have your support group, charity, or society listed here without joining the Global Affiliate Program, please fill out this form. To make changes to your listing, please get in touch with our Local Groups and Outreach Liaison, Shani Weber, at shani.weber@ehlers-danlos.com.

For more information about groups:


Affiliates and Support Groups in Africa


Affiliates and Support Groups in Asia


Affiliates and Support Groups in Europe


Affiliates and Support Groups in North America


Affiliates and Support Groups in Oceania


Affiliates and Support Groups in South America


International Affiliates and Support Groups