Affiliates, Support Groups, and Charities

The Ehlers-Danlos Society provides listings of support groups and charities, many of whom have joined the Society’s Global Affiliate Program. Please choose your geographic region below.

We strive to increase awareness, improve care, and grow community support for those around the world living with Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related disorders. Hundreds of local support groups and charities are working hard to help those with EDS and HSD in their communities throughout the world.

The Ehlers-Danlos Society also collaborates through our Global Affiliation Network to expand outreach, programming, and collaborative efforts with outstanding regional and local support groups, charities, and societies. These affiliates work toward a future where everyone living with EDS, HSD, and related disorders can receive the care and support they need through wider awareness in the medical and general communities, expanded research efforts, and improved medical care. 

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.


Affiliates and Support Groups in Africa


Affiliates and Support Groups in Asia


Affiliates and Support Groups in Europe


Affiliates and Support Groups in North America


Affiliates and Support Groups in Oceania


Affiliates and Support Groups in South America


International Affiliates and Support Groups