We lost our beautiful daughter Alivia, to vEDS, on January 1, 2022. Her heart completely gave out. She was only 15. She lived her life exactly the way she wanted to. She learned to skip to her own beat, knowing any day could be her last. She fought every day, just to get through the day. She laughed, smiled, and kept a positive outlook every step of the way. She didn’t talk much about her disease because she didn’t want anyone to look at her any different. She wanted people to see her for exactly who she was. She enjoyed working out, riding her bike, skate boarding, swimming, fishing, drawing, music, sunsets, and just relaxing . She had such a beautiful little soul. She was an amazing daughter, sister, and friend. She will be greatly missed by all.