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Passed away on January 11, 2013
Amy passed away in her home from complications of Ehlers-Danlos syndrome. Her husband, Kelby Kidd Price, whom she married in 2003, and her parents, Bob and Elaine Bordogna, and Bell, her service dog and constant companion, were by her side. She was preceded in death by her brother, Rob, in 2007.
Amy was born in Atlanta, GA on October 3, 1971 and moved with her family to Louisville in 1980. She attended St. Francis School, Goshen and was a 1990 graduate of Brooks School in North Andover, MA. Amy attended Camp Onaway, Bristol, NH and the Outward Bound Maine Hurricane Island School. She often spoke how these experiences influenced her life to meet challenges head on. She attended Smith College and it was during her freshman year that she was first confined to a wheelchair. It was the impetus for her lifelong interest and passion to improve accessibility for those with special needs. To further this interest, she left Smith after her freshman year to volunteer her time with the Disability Rights Advocates, in Berkeley CA, an agency in the forefront during the early days of the ADA. She returned to Smith, where she served on the Northampton MA Zoning Board and addressed architectural standards for accessibility in public spaces. She graduated Smith in 1995 with a dual major in music and anthropology.
As part of her senior thesis program Amy spent a year at Union College in southeast Kentucky. Her focus was appalachian studies, culture and music. She enriched that experience by joining weekly Bluegrass music gatherings with regional musicians, singing and playing the guitar. When she returned to Louisville in 1995 she and Kelby brought together bluegrass musicians from all corners of the state for jam sessions at their home in the Highlands.
In 1996 she and Kelby started Pilgrim IT, a consulting firm that prospered until her condition worsened and the business demands were too great for her failing health. During that time she volunteered at the School for the Blind and recorded technical books that would aid those with sight impairment. These books required advanced skill in information technology and the ability to transform mathematical formulas, charts and graphs so that they could be understood by the visually impaired. Amy Bordogan was a former member of the Louisville Downtown Rotary where she donated many hours of her IT skills. She served on the Board of Directors of The de Paul School, where her primary contribution as a board member was to completely revise and rewrite the technology infrastructure for the school and empower teachers and students by bringing technology to the classroom.
She was an official judge at the Kentucky State Fair for knitting and textiles. Amy wrote grants, created business plans and offered her IT acumen to create networks for non-profit organizations locally and across Kentucky.
Her health may have limited her ability to navigate the world as others might, but she had the unique ability to bring the world to her bedside. Her interests were great: photography, drawing, metal work, cuisines of the world, knitting, textiles, spirituality and natural medicinal arts, and always music. Although she was confined to her bed for most of the last seven years Amy remained focused on her life interests, which always were growing in scope and number.
She was the best kind of friend. Even while her physical abilities were shrinking, she continued to expand the world of others by teaching and sharing her talents and she made it seem effortless. The regimen of her health care played havoc with her physical body, but she remained beautiful in her spirit to the end; charismatic, courageous, funny, generous and loving. Through all of these challenging years, it was maintaining her independence that was important to her core happiness.
Donations can be made to The Ehlers-Danlos Society.
Categorized in: In Memoriam