Published: 19/08/2022 Tags: The Ehlers-Danlos Society News

Applications Now Open: Microgrants Round 1

The Ehlers-Danlos Society is now welcoming applications for the 2022 Microgrants Round 1. 

This grant round is seeking to award ten grants of up to $5,000 each.

The purpose of this funding is to be able to assist researchers in undertaking small studies and activities such as surveys and collation and analysis of existing data, for example, in the areas of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). It will also be used to determine aspects of all types of Ehlers – Danlos Syndromes and Hypermobility spectrum disorders that can be further investigated to improve the management and outcomes. The following areas have been prioritized as areas that need attention in research:

  • Genotype and Phenotype – The identification of specific genotype and phenotype groups and subsequent prevalence studies.
  • Time to Diagnosis Reduction – Exploration of reducing the time it takes an individual to receive a diagnosis and earlier counseling.
  • Centers and Networks of Excellence – The availability of proper centers that have the appropriate resources to assist patients, as well as proper pathways to follow.
  • Therapies and Management – Elucidation of mechanisms and therapies that can target these mechanisms of symptoms such as pain and fatigue, as well as the investigation of the mechanism behind comorbidities.

Online application for this research grant will open on August 19, 2022, and will close on September 19, 2022. Applicants will be notified on the result of their application October 17-18, 2022.

Virtual Support Groups

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Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

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