Published: 28/12/2019 Tags: The Ehlers-Danlos Society News

Ask The Society: Webinar January 12, 2020

Join The Ehlers-Danlos Society at 12 noon EST on January 12, 2020, for “Ask The Society”, a webinar with Board of Directors Chair, Susan Hawkins; President and CEO, Lara Bloom; Chair of the Medical Board, Dr. Clair Francomano; Chief Medical Officer, Dr. Alan Hakim; and Chief Scientific Officer, Professor Fransiska Malfait. 

We want to really focus on the needs and wants of our EDS and HSD community in 2020, and we want to hear from YOU! “Ask The Society” is your chance to ask us any questions, and to let us know your research priorities, what events you want to see and where in the world, and what campaigns you think are important for advocacy and awareness. This is an opportunity to ask us any questions about existing research and campaigns, and to give your thoughts and ideas of how we can further support the community. 

The new decade will bring more global events, translated materials into multiple languages, a brand new accessible website, more research grants than ever before, more educational efforts with EDS ECHO, and more virtual support in the form of webinars and support groups and live streaming. 

Our community deserves so much, and The Society is here to ensure they get it. This cannot be done without you, and we are so grateful for your support in making this possible. Email your questions by noon EST to January 5, 2020 to 

Click here to register for the webinar.

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

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