The Ehlers-Danlos Society Awards

Community Choice Awards

The Ehlers-Danlos Society Awards is an annual celebration of individuals who have made an impact and worked for change for those living with, and affected by, EDS, HSD, and related conditions. 

Voting is now open for Community Choice: Community Advocate 2021, and Community Choice: Healthcare Professional 2021. Voting closes midnight Eastern Standard Time, June 13, 2021.

Community Choice Award: Community Advocate
This award is voted for by the community, for the community, and honours individuals who have made a difference to the lives of community members through advocacy and supporting people on their journeys with EDS and HSD.

Community Choice Award: Healthcare Professional
This award is voted for by the community and colleagues, honoring healthcare professionals who have demonstrated a commitment to supporting patients and working for awareness and education for the wider community.

THE EHLERS-DANLOS SOCIETY AWARDS

The Nancy Rogowski Advocate of the Year Award
From the industriousness of Nancy Rogowski’s quest to learn more and to spark hope in others—to the volunteer efforts, initiative, and support of thousands to transform our understanding of the Ehlers-Danlos syndromes—The Ehlers-Danlos Society emerged in May 2016 as the very first truly international organization devoted entirely to global research and the support, advocacy, and advancement of the understanding of EDS.
 
This award honors individuals who have demonstrated excellent advocacy and dedication to raising awareness and understanding for our community living with Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
 
Lifetime Achievement Award 
This award honors outstanding leaders, advocates, researchers, and health professionals who have made significant contributions to the advancement of EDS and HSD over their lifetimes. They represent the most supportive and dedicated people in the field of Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
 
Pioneer in EDS and HSD Research Award
This award honors individuals who have demonstrated a long-term commitment to outstanding research and progression into Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
 
Pioneer in EDS and HSD Clinical Care Award
This award honors individuals who have demonstrated a long-term commitment to outstanding clinical care for those living with Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
 
Outstanding Consortium Member Award
This award honors individuals who have demonstrated excellent leadership skills and commitment to the International Consortium for those living with Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions. This award is decided by the Consortium steering committee.
 

PREVIOUS AWARDEES

Nancy Rogowski Advocate of the Year Award
Chrystal Nichols
Lifetime Achievement Award
Outstanding Consortium Member
Pioneer in EDS Research
Jessica Eccles
Pioneer in EDS and HSD Clinical Care
Lifetime Achievement Award
 
Outstanding Contribution Award
 
Outstanding Contribution Award
Shane Robinson
 
Outstanding Consortium Member
 
Pioneer in EDS Research
 
Pioneer in EDS and HSD Clinical Care
 
Volunteer of the year
Sarah-Jo Ritchie
 
Advocate of the Year
Lifetime Achievement Award
 
The Nancy Rogowski Award
Lifetime Achievement Award
 
Volunteer of the Year
Victoria Graham
 
Community Choice Award
 
Lifetime Achievement Award
 
Pioneer in EDS Research
 
Pioneer in EDS Research
 
Pioneer in EDS Clinical Care
 
Volunteer of the Year
 
Volunteer of the Year