The Ehlers-Danlos Society Awards is an annual celebration of individuals who have made an impact and worked for change for those living with, and affected by, EDS, HSD, and related conditions.
The Nancy Rogowski Advocate of the Year Award
From the industriousness of Nancy Rogowski’s quest to learn more and to spark hope in others—to the volunteer efforts, initiative, and support of thousands to transform our understanding of the Ehlers-Danlos syndromes—The Ehlers-Danlos Society emerged in May 2016 as the very first truly international organization devoted entirely to global research and the support, advocacy, and advancement of the understanding of EDS.
This award honors individuals who have demonstrated excellent advocacy and dedication to raising awareness and understanding for our community living with Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
Lifetime Achievement Award
This award honors outstanding leaders, advocates, researchers, and health professionals who have made significant contributions to the advancement of EDS and HSD over their lifetimes. They represent the most supportive and dedicated people in the field of Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
Pioneer in EDS and HSD Research Award
This award honors individuals who have demonstrated a long term commitment to outstanding research and progression into Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
Pioneer in EDS and HSD Clinical Care Award
This award honors individuals who have demonstrated a long term commitment to outstanding clinical care for those living with Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions.
Outstanding Consortium Member Award
This award honors individuals who have demonstrated excellent leadership skills and commitment to the International Consortium for those living with Ehlers-Danlos syndromes, hypermobility spectrum disorders, and the associated symptoms and conditions. This award is decided by the Consortium steering committee.
PREVIOUS AWARDEES
Nancy Rogowski Advocate of the Year Award
Chrystal Nichols
Lifetime Achievement Award
Outstanding Consortium Member
Pioneer in EDS Research
Jessica Eccles
Pioneer in EDS and HSD Clinical Care
Lifetime Achievement Award
Outstanding Contribution Award
Outstanding Contribution Award
Shane Robinson
Outstanding Consortium Member
Pioneer in EDS Research
Pioneer in EDS and HSD Clinical Care
Volunteer of the year
Sarah-Jo Ritchie
Advocate of the Year
Community Choice Award
Lifetime Achievement Award
Pioneer in EDS Research
Pioneer in EDS Research
Pioneer in EDS Clinical Care
Volunteer of the Year
Volunteer of the Year