Ben Hertz, a junior at Lemon Bay High School in Englewood, Florida, lives with Ehlers-Danlos syndrome (EDS). Despite enduring chronic joint pain and undergoing significant struggles completing long written exams, Ben remained determined to pursue the academically demanding AICE program (Advanced International Certificate of Education), a globally recognized diploma.
Initially, the program didn’t offer accommodations for students with disabilities, and Ben found himself unable to complete timed, five-hour written exams. But instead of backing down, he advocated for change.
With resilience, support from his mother, who also lives with EDS, and a strong will to succeed, Ben pushed for the introduction of digital exams that better suited students with chronic conditions. His input not only helped change the rules at his own school but made its way into global academic discussions.
He was selected by AICE officials to help trial a digitized exam format. His feedback was so impactful that it’s being featured in an international AICE newsletter, with digital exams and better accommodations launching globally in June 2026.
Ben’s advocacy is expected to benefit at least 20% of students at his school alone—those with conditions like ADHD, dyslexia, and chronic pain.
Ben hopes to study microbiology and pursue a cure for his illness. His message to others:
“If you know that something is wrong, try your best to figure it out and make it seen… Understand that some people would be more comfortable with this, but make it matter to the people who need it most—the people that can support you and make changes in your life.”
