Sydney Rohmann was 16 years old when she was diagnosed with Chiari malformation and had to have brain surgery.
Other diagnoses followed, which have left Rohmann dependent on other people. Now at 19, Rohmann is trying to gain back some of her independence with help from a service dog, Dutch.
On Saturday, April 16, Rohmann, a Mukwonago High School graduate, is hosting a fundraiser at Alpine Lanes to cover some of the expenses of a service dog, which can cost around $20,000.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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